Queiroz Débora Milena Farias, Amorim Maria Helena Costa, Zandonade Eliana, Miotto Maria Helena Monteiro de Barros
Universidade Federal do Espírito Santo, Vitória, Espírito Santo, Brazil.
Invest Educ Enferm. 2015;33(2):343-54. doi: 10.17533/udea.iee.v33n2a17.
To assess the quality of life of children and adolescents with cancer of studies that applied the Pediatric Quality of Life Inventory 3.0 Cancer Module.
The study was carried out on the basis of data Scopus Web of Science, BIREME, EBSCO host and Psychoinfo of articles in Spanish, English and Portuguese, and published from 1998 to 2013 that used the Pediatric Quality of life Inventory 3.0 Cancer Module.
21 articles were selected, of which 47.6% were carried out in America, and 61.9% of editions comprehended from 2011 to 2013. The scores variation by dimensions and in general was probably related for the selection of comparison groups, as the diversity of inclusion criteria and variants may be observed for the analysis in each study. The existence of a standard dimension could not be verified either for children ́s /adolescents reports or for parents.
It is concluded that the scores averages by dimensions in general have not achieved values below 30 and the largest scores by dimension are above 80. It is suggested that the treatment anxiety dimension in children ́s and adolescents ́s reports may have obtained the largest scores within each study, that is lesser than the difficulty of the children and adolescents in face of the treatment and cancer. Nursing becomes a constant presence in the life of children and adolescents with cancer and it may provide a better quality of life for developing nursing activities and the team may demistify, clarify and help in all phases of the illness and treatment.
评估应用儿童生活质量量表3.0癌症模块的研究中癌症儿童和青少年的生活质量。
本研究基于Scopus、科学网、拉丁美洲和加勒比地区健康科学文献数据库、EBSCO主机以及心理学文摘数据库中1998年至2013年发表的西班牙语、英语和葡萄牙语文章的数据,这些文章使用了儿童生活质量量表3.0癌症模块。
共筛选出21篇文章,其中47.6%在美国开展,61.9%的版本涵盖2011年至2013年。各维度得分的变化以及总体得分的变化可能与比较组的选择有关,因为在每项研究的分析中可以观察到纳入标准和变量的多样性。无论是儿童/青少年报告还是家长报告,均未验证存在标准维度。
得出的结论是,各维度的平均得分总体上未达到30分以下,各维度的最高得分高于80分。建议儿童和青少年报告中的治疗焦虑维度在每项研究中可能获得了最高得分,这低于儿童和青少年面对治疗和癌症时的困难程度。护理在癌症儿童和青少年的生活中始终存在,通过开展护理活动可为其提供更好的生活质量,护理团队可在疾病和治疗的各个阶段消除误解、进行解释并提供帮助。