Klatchoian Denise A, Len Claudio A, Terreri Maria Teresa R A, Silva Marina, Itamoto Caroline, Ciconelli Rozana M, Varni James W, Hilário Maria Odete E
Pediatric Rheumatology Unit, Department of Pediatrics, Universidade Federal de São Paulo - Escola Paulista de Medicina (UNIFESP-EPM), São Paulo, SP, Brazil.
J Pediatr (Rio J). 2008 Jul-Aug;84(4):308-15. doi: 10.2223/JPED.1788. Epub 2008 Aug 1.
To evaluate the reliability and validity of the Brazilian version of the Pediatric Quality of Life Inventory (PedsQL 4.0) Generic Core Scales and measure the quality of life of healthy children and adolescents and patients with rheumatic diseases.
We followed the translation methodology proposed by the developer of the original English version of the PedsQL 4.0. The instrument was administered by interviews in two groups: 240 apparently healthy children and adolescents from São Paulo (SP, Brazil) and 105 patients with chronic rheumatic diseases matched by age, as well as their respective parents or caregivers. The parent proxy-report was administered to the children's parents or caregivers separately on the same day.
Cronbach's alpha values were between 0.6 and 0.9 for all dimensions, demonstrating adequate internal consistency. Patients with rheumatic diseases reported significantly lower PedsQL scores on all dimensions when compared to the healthy control group (p < 0.0001). Construct validity of the Brazilian Portuguese version of the PedsQL 4.0 was also confirmed. Parent proxy-report of patients with rheumatic diseases highly correlated with child self-report for physical functioning (r = 0.77, p < 0.001) and school functioning (r = 0.73, p < 0.001). Lower correlations were observed for emotional and social functioning (r = 0.40 and 0.59, respectively, p < 0.001).
The tool demonstrated reliability, validity, and the administration was fast and easy. Quality of life in patients with rheumatic diseases was significantly lower than in the healthy control group, supporting the necessity of a comprehensive approach to rheumatic disease management, focused on the psychosocial dimensions.
评估巴西版儿童生活质量量表（PedsQL 4.0）通用核心量表的信度和效度，并测量健康儿童和青少年以及风湿性疾病患者的生活质量。
我们遵循了PedsQL 4.0英文版开发者提出的翻译方法。该工具通过访谈对两组人群进行施测：来自巴西圣保罗的240名看似健康的儿童和青少年，以及105名按年龄匹配的慢性风湿性疾病患者，还有他们各自的父母或照料者。在同一天，儿童的父母或照料者分别单独完成家长代理报告。
所有维度的克朗巴哈系数值在0.6至0.9之间，表明具有足够的内部一致性。与健康对照组相比，风湿性疾病患者在所有维度上的PedsQL得分均显著较低（p < 0.0001）。巴西葡萄牙语版PedsQL 4.0的结构效度也得到了证实。风湿性疾病患者的家长代理报告与儿童自我报告在身体功能（r = 0.77，p < 0.001）和学校功能（r = 0.73，p < 0.001）方面高度相关。在情感和社会功能方面观察到的相关性较低（分别为r = 0.40和0.59，p < 0.001）。
该工具显示出信度、效度，且施测快速简便。风湿性疾病患者的生活质量显著低于健康对照组，这支持了以社会心理维度为重点的风湿性疾病综合管理方法的必要性。
