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肺癌患者的个人责任、遗憾与医学耻辱感

Personal responsibility, regret, and medical stigma among individuals living with lung cancer.

作者信息

Criswell Kevin R, Owen Jason E, Thornton Andrea A, Stanton Annette L

机构信息

Department of Psychology, Loma Linda University, Loma Linda, CA, USA.

National Center for PTSD, Veterans Affairs Palo Alto Health Care System, 795 Willow Rd., Menlo Park, CA, 90425, USA.

出版信息

J Behav Med. 2016 Apr;39(2):241-53. doi: 10.1007/s10865-015-9686-6. Epub 2015 Nov 6.

DOI:10.1007/s10865-015-9686-6
PMID:26546243
Abstract

Understanding the degree to which adults with lung cancer perceive personal responsibility for their disease, personal regret for actions that may have contributed to lung cancer, and potential stigmatization from others is important, because these perceptions and experiences may be linked with treatment nonadherence, feelings of isolation, avoidance of healthcare providers, and poor quality of life. The purpose of this study was to evaluate rates and intensity of these types of experiences and to characterize the extent to which they are linked with smoking status and psychological adjustment in those living with lung cancer. Adults with lung cancer (N = 213) were recruited from two major cancer centers to complete a mail survey. Perceived responsibility was frequent in those who had ever smoked (74-80%), whereas regret and feelings of stigmatization were less frequent. When present, however, personal regret and stigmatization were associated with adverse psychological outcomes, particularly for never smokers. These results are consistent with the theory of stereotype threat and have clinical implications for management of people with lung cancer.

摘要

了解肺癌成年患者对自身疾病的个人责任感程度、对可能导致肺癌的行为的个人悔恨感以及来自他人的潜在污名化情况非常重要,因为这些认知和经历可能与治疗不依从、孤独感、回避医疗服务提供者以及生活质量差有关。本研究的目的是评估这些类型经历的发生率和强度,并描述它们与肺癌患者吸烟状况和心理调适的关联程度。从两个主要癌症中心招募了213名肺癌成年患者来完成一项邮寄调查。曾经吸烟的患者中,感知到责任感的情况很常见(74 - 80%),而悔恨感和污名化感受则较少见。然而,当出现个人悔恨和污名化时,它们与不良心理结果相关,尤其是对于从不吸烟者而言。这些结果与刻板印象威胁理论一致,并且对肺癌患者的管理具有临床意义。

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