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喉切除术后的担忧与问题:患者视角

Apprehensions and problems after laryngectomy: Patients' perspective.

作者信息

Hirani Ismail, Siddiqui Atif Hafeez, Muhammad Khyani Iqbal Abdul

机构信息

Department of ENT, Head & Neck Surgery, Saheed Muhtarma Benazir Bhutto Medical College & Lyari General Hospital, Karachi.

Department of ENT, Head & Neck Surgery, Dow Medical College & Civil Hospital Karachi.

出版信息

J Pak Med Assoc. 2015 Nov;65(11):1214-8.

Abstract

OBJECTIVE

To evaluate the apprehensions, social, sexual and financial problems in patients with advanced laryngeal cancer after total laryngectomy and the impact of attending laryngeal club on these problems.

METHODS

The analytical study was conducted at the Dow Medical College and Civil Hospital Karachi from January 1996 to December 2011. Patients with total laryngectomy, operated for advanced laryngeal cancer at various centres of Sindh and Balochistan, attending Laryngeal Club of Pakistan, situated at Civil Hospital Karachi, were included. All the patients were evaluated through a questionnaire covering their apprehensions regarding social, sexual and financial impact on their lives after total laryngectomy. Data was analysed using SPSS 16.

RESULTS

Of the 125 patients, 120(96%) were males, and 5(4%) were females; all housewives. The overall mean age was 54.8±0.5 years (range: 31-65 years). Further, 92(74%) participants were worried about financial uncertainty, while 84(67%) had regrets over loss of their voice; patients worried about losing family support and facing social rejection were 23(18%) and 15(12%) respectively. Only 7(5%) patients feared losing sexual relationship with their spouse. All these apprehensions were subdued after attending the Laryngeal Club of Pakistan. Severe financial impact was faced by 55(44%) patients due to loss of job, while 05(4%) had moderate impact due to change of job with lower income and 60(48%) patients had no financial problem. A good 102(82%) participants thought the support from their friends and family was upto their expectations; 98(78%) enjoyed satisfactory sex life although with reduced frequency of 1 to 2 intercourses per month; 21(17%) were having the frequency of 3-10 per month; and 3(2%) had more than 10 per month. Only 16(13%) patients were not involved in sexual relations with their spouses due to various reasons.

CONCLUSIONS

Majority of laryngectomised patients expressed apprehensions and showed some social problems after laryngectomy, especially in the initial phase which improved either with passage of time or after attending Laryngectomy Club. The main problem was financial constraints; majority had good friends and family support and enjoyed satisfactory sexual relationship with their spouse.

摘要

目的

评估全喉切除术后晚期喉癌患者的担忧、社会、性和经济问题,以及参加喉癌俱乐部对这些问题的影响。

方法

1996年1月至2011年12月在卡拉奇道医学学院和市民医院进行了这项分析性研究。纳入了在信德省和俾路支省各中心接受全喉切除术治疗晚期喉癌、并参加位于卡拉奇市民医院的巴基斯坦喉癌俱乐部的患者。所有患者均通过一份问卷进行评估,问卷涵盖了他们对全喉切除术后生活的社会、性和经济影响的担忧。使用SPSS 16对数据进行分析。

结果

125例患者中,120例(96%)为男性,5例(4%)为女性,均为家庭主妇。总体平均年龄为54.8±0.5岁(范围:31 - 65岁)。此外,92例(74%)参与者担心经济不稳定,84例(67%)对失声感到遗憾;担心失去家庭支持和面临社会排斥的患者分别为23例(18%)和15例(12%)。只有7例(5%)患者担心失去与配偶的性关系。参加巴基斯坦喉癌俱乐部后,所有这些担忧都有所缓解。55例(44%)患者因失业面临严重经济影响,5例(4%)因换工作且收入降低受到中度影响,60例(48%)患者没有经济问题。102例(82%)参与者认为朋友和家人的支持达到了他们的期望;98例(78%)性生活满意,尽管频率降至每月1至2次;21例(17%)每月频率为3 - 10次;3例(2%)每月超过10次。仅16例(13%)患者因各种原因未与配偶发生性关系。

结论

大多数全喉切除患者在术后表达了担忧并出现了一些社会问题,尤其是在初始阶段,这些问题随着时间推移或参加喉癌俱乐部后有所改善。主要问题是经济限制;大多数患者有好朋友和家人的支持,与配偶性生活满意。

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