Breen Lauren J, Aoun Samar M, Rumbold Bruce, McNamara Beverley, Howting Denise A, Mancini Vincent
1 Curtin University, Perth, Western Australia, Australia.
2 La Trobe University, Perth, Western Australia, Australia.
Am J Hosp Palliat Care. 2017 Apr;34(3):275-281. doi: 10.1177/1049909115615568. Epub 2016 Jul 11.
Most bereaved people do not require specialist intervention, yet building community capacity in providing bereavement support is underdeveloped. While family caregivers indicate a need for more information about bereavement, there is little evidence to guide what this information might contain.
The study's purpose was to inform bereavement support by determining the advice people bereaved through expected deaths in palliative care have for others in that situation.
Four funeral providers posted a questionnaire to previous clients who had used their services 6 to 24 months prior and 678 bereaved people responded.
SETTING/PARTICIPANTS: The sample size for this study comprised 265 bereaved people whose relative used palliative care services.
The questionnaire comprised 82 questions about caregiving, bereavement support, current bereavement-related distress, and 2 open-ended questions concerning their bereavement, one of them on advice they have to other people in the same situation.
Family caregivers (n = 140) of people who received palliative care responded to the open-ended question about advice for others. An open content analysis yielded 3 themes-preparations for bereavement, utilizing social networks, and strategies for dealing with grief.
Bereaved family caregivers' experiential knowledge can be harnessed to progress the development of bereavement care strategies for the good of the community. These responses could be incorporated into information brochures, posters, and other community education avenues in order to upskill palliative care bereavement volunteers and the wider community so that bereaved family caregivers are best supported.
大多数失去亲人的人不需要专业干预，但社区提供丧亲之痛支持的能力建设尚不完善。虽然家庭照顾者表示需要更多关于丧亲之痛的信息，但几乎没有证据能指导这些信息可能包含哪些内容。
本研究的目的是通过确定在姑息治疗中因预期死亡而失去亲人的人对处于相同情况的其他人的建议，为丧亲之痛支持提供参考。
四家葬礼服务提供商向6至24个月前使用过其服务的前客户发放了问卷，678名失去亲人的人做出了回应。
设置/参与者：本研究的样本量包括265名其亲属使用过姑息治疗服务的失去亲人的人。
问卷包括82个关于照顾、丧亲之痛支持、当前与丧亲之痛相关的痛苦的问题，以及2个关于他们丧亲之痛的开放式问题，其中一个是关于他们对处于相同情况的其他人的建议。
接受姑息治疗者的家庭照顾者（n = 140）回答了关于给他人建议的开放式问题。开放式内容分析产生了3个主题——丧亲之痛的准备、利用社交网络以及应对悲伤的策略。
可以利用失去亲人的家庭照顾者的经验知识，推动丧亲之痛护理策略的发展，以造福社区。这些回答可以纳入信息手册、海报和其他社区教育途径，以使姑息治疗丧亲之痛志愿者和更广泛的社区提高技能，从而为失去亲人的家庭照顾者提供最佳支持。
