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多发性硬化症患者配偶照顾者在照顾者压力、支持需求、社会支持及生活质量方面的性别差异。

Gender differences in caregiver strain, needs for support, social support, and quality of life among spousal caregivers of persons with multiple sclerosis.

作者信息

Lee Eun-Jeong, Pieczynski Jessica, DeDios-Stern Samantha, Simonetti Camille, Lee Gloria K

机构信息

Department of Psychology, Illinois Institute of Technology, Chicago, IL, USA.

West Los Angeles VA Medical Center, Los Angeles, CA, USA.

出版信息

Work. 2015;52(4):777-87. doi: 10.3233/WOR-152205.

Abstract

BACKGROUND

Caregivers of individuals with MS may experience unique caregiver strain due to the age at onset and progressive nature of the disease. Additionally, because MS is more prevalent in women, men often become spousal caregivers. However, gender differences in psychosocial adjustment among caregivers have not been fully explored.

OBJECTIVE

The purpose of this study was to explore gender differences in the need for various supports and type of social support needed, caregiver strain, and quality of life among caregivers for individuals with MS.

METHODS

106 caregivers participated in this study. Independent sample t-tests and multiple regression analyses were conducted to examine gender differences in strain, need for supports, social support, and quality of life.

RESULTS

Analyses revealed gender difference among important psychosocial variables. Specifically, women reported higher levels of caregiver strain, higher needs for emotional support, and higher perceived social support. Additionally, multiple regression analyses revealed an inverse relationship between expressed emotional needs and quality of life for men, but not for women.

CONCLUSIONS

MS caregivers experience significant strain that diminishes quality of life. Social support and needs fulfillment can act to buffer this stress; however, results indicate that this varies by gender, with gender differences observed in strain, perceived support, and expressed needs among MS caregivers. The study implications for rehabilitation research are discussed.

摘要

背景

由于发病年龄和疾病的渐进性,多发性硬化症患者的照顾者可能会经历独特的照顾压力。此外,由于多发性硬化症在女性中更为普遍,男性常常成为配偶照顾者。然而,照顾者心理社会调适方面的性别差异尚未得到充分探讨。

目的

本研究旨在探讨多发性硬化症患者照顾者在各种支持需求、所需社会支持类型、照顾压力以及生活质量方面的性别差异。

方法

106名照顾者参与了本研究。进行独立样本t检验和多元回归分析,以检验在压力、支持需求、社会支持和生活质量方面的性别差异。

结果

分析揭示了重要心理社会变量之间的性别差异。具体而言,女性报告的照顾压力水平更高,对情感支持的需求更高,且感知到的社会支持更高。此外,多元回归分析显示,男性表达的情感需求与生活质量呈负相关,而女性则不然。

结论

多发性硬化症照顾者经历着显著的压力,这降低了生活质量。社会支持和需求满足可以起到缓冲这种压力的作用;然而,结果表明这因性别而异,在多发性硬化症照顾者的压力、感知到的支持和表达的需求方面存在性别差异。讨论了该研究对康复研究的意义。

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