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多发性硬化症中的护理工作。

Caregiving in multiple sclerosis.

作者信息

Hillman Lynda

机构信息

Multiple Sclerosis Center, University of Washington Medical Center, Box 358815, 1536 North 115th Street, Seattle, WA 98133, USA.

出版信息

Phys Med Rehabil Clin N Am. 2013 Nov;24(4):619-27. doi: 10.1016/j.pmr.2013.06.007.

Abstract

Thirty percent of persons with multiple sclerosis (pwMS) require caregiving owing to their disability, and 80% of care to pwMS is provided by informal unpaid caregivers. The average caregiver is male, in a spousal/partner relationship with the pwMS, and provides more than 4 hours per day of care for many years. The physical, emotional, and time-intensive nature of caregiving for pwMS frequently impairs the caregiver's own physical and emotional health. Rehabilitation medicine professionals should be aware of the high risk of caregiver burden. Assessment of caregiver needs and appropriate intervention will help minimize the burden on caregivers.

摘要

30%的多发性硬化症患者(pwMS)因残疾需要他人照顾,而80%的对pwMS患者的照顾是由非正式的无偿照顾者提供的。一般的照顾者为男性,与pwMS患者是配偶/伴侣关系,多年来每天提供超过4小时的照顾。对pwMS患者进行照顾所涉及的身体、情感和时间方面的高强度性质常常损害照顾者自身的身心健康。康复医学专业人员应意识到照顾者负担过重的高风险。评估照顾者的需求并进行适当干预将有助于减轻照顾者的负担。

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