• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

多发性硬化症中的护理工作。

Caregiving in multiple sclerosis.

作者信息

Hillman Lynda

机构信息

Multiple Sclerosis Center, University of Washington Medical Center, Box 358815, 1536 North 115th Street, Seattle, WA 98133, USA.

出版信息

Phys Med Rehabil Clin N Am. 2013 Nov;24(4):619-27. doi: 10.1016/j.pmr.2013.06.007.

DOI:10.1016/j.pmr.2013.06.007
PMID:24314680
Abstract

Thirty percent of persons with multiple sclerosis (pwMS) require caregiving owing to their disability, and 80% of care to pwMS is provided by informal unpaid caregivers. The average caregiver is male, in a spousal/partner relationship with the pwMS, and provides more than 4 hours per day of care for many years. The physical, emotional, and time-intensive nature of caregiving for pwMS frequently impairs the caregiver's own physical and emotional health. Rehabilitation medicine professionals should be aware of the high risk of caregiver burden. Assessment of caregiver needs and appropriate intervention will help minimize the burden on caregivers.

摘要

30%的多发性硬化症患者(pwMS)因残疾需要他人照顾,而80%的对pwMS患者的照顾是由非正式的无偿照顾者提供的。一般的照顾者为男性,与pwMS患者是配偶/伴侣关系,多年来每天提供超过4小时的照顾。对pwMS患者进行照顾所涉及的身体、情感和时间方面的高强度性质常常损害照顾者自身的身心健康。康复医学专业人员应意识到照顾者负担过重的高风险。评估照顾者的需求并进行适当干预将有助于减轻照顾者的负担。

相似文献

1
Caregiving in multiple sclerosis.多发性硬化症中的护理工作。
Phys Med Rehabil Clin N Am. 2013 Nov;24(4):619-27. doi: 10.1016/j.pmr.2013.06.007.
2
Modeling costs and burden of informal caregiving for persons with bipolar disorder.双相情感障碍患者非正式照料的成本与负担建模
J Ment Health Policy Econ. 2006 Jun;9(2):99-110.
3
Caregiver burden of terminally-ill adults in the home setting.居家终末期成人患者的照护者负担。
Nurs Health Sci. 2012 Dec;14(4):435-7. doi: 10.1111/nhs.12013.
4
Nurturing a valuable resource: family caregivers in multiple sclerosis.培育一种宝贵资源:多发性硬化症患者的家庭护理者
Axone. 1992 Mar;13(3):87-94.
5
Multiple sclerosis: stressors and coping strategies in spousal caregivers.多发性硬化症:配偶照顾者的压力源与应对策略
J Community Health Nurs. 1993;10(3):123-35. doi: 10.1207/s15327655jchn1003_1.
6
[Impact of duration of caregiving on stress among primary caregivers of elderly].[照料时长对老年患者主要照料者压力的影响]
Nihon Koshu Eisei Zasshi. 1998 Apr;45(4):320-35.
7
Psychosocial aspects of caregiving to stroke patients.中风患者护理的社会心理方面。
Axone. 2005 Sep;27(1):18-24.
8
Social support: gender differences in multiple sclerosis spousal caregivers.社会支持:多发性硬化症配偶照料者的性别差异
J Neurosci Nurs. 1995 Oct;27(5):305-11. doi: 10.1097/01376517-199510000-00012.
9
"How much can I give?" The other side of caregiving.“我能付出多少?” 照顾他人的另一面。
Caring. 1995 Apr;14(4):41-3.
10
A practical guide to caring for caregivers.照顾者护理实用指南。
Am Fam Physician. 2000 Dec 15;62(12):2613-22.

引用本文的文献

1
Understanding Diverse Caregiver Experiences and Their Impact on Caregiver Burden in Multiple Sclerosis.了解多发性硬化症中不同护理人员的经历及其对护理人员负担的影响。
Int J MS Care. 2025 Apr 28;27(Q2):125-133. doi: 10.7224/1537-2073.2024-025. eCollection 2025 Apr.
2
Mapping Resilience: Structural Equation Modeling of Psychological Resilience in Multiple Sclerosis Care Partners.映射复原力:多发性硬化症护理伙伴心理复原力的结构方程模型
Int J MS Care. 2023 Nov-Dec;25(6):245-251. doi: 10.7224/1537-2073.2023-078. Epub 2023 Nov 8.
3
Addressing the Needs of Multiple Sclerosis Caregivers From Diagnosis Onward: The Development of a Comprehensive Online Caregiver Protocol.
从诊断开始满足多发性硬化症护理人员的需求:全面在线护理人员方案的制定。
Int J MS Care. 2023 Nov-Dec;25(6):273-277. doi: 10.7224/1537-2073.2023-075. Epub 2023 Nov 8.
4
Physical Activity Together for Multiple Sclerosis (PAT-MS): A randomized controlled feasibility trial of a dyadic behaviour change intervention.多发性硬化症患者共同参与的体育活动(PAT-MS):一项二元行为改变干预的随机对照可行性试验。
Contemp Clin Trials Commun. 2023 Oct 16;36:101222. doi: 10.1016/j.conctc.2023.101222. eCollection 2023 Dec.
5
The Clinical and Economic Impact of Employees Who Are Care Partners of Patients with Multiple Sclerosis by Disease Severity.多发性硬化症患者的护理伙伴员工按疾病严重程度划分的临床和经济影响
J Health Econ Outcomes Res. 2023 Apr 13;10(1):91-101. doi: 10.36469/001c.57593. eCollection 2023.
6
Profiles of resilience in multiple sclerosis family care-partners: A Canadian cross-sectional study.多发性硬化症家庭照料伙伴的复原力概况:一项加拿大横断面研究。
Mult Scler J Exp Transl Clin. 2022 Nov 24;8(4):20552173221138935. doi: 10.1177/20552173221138935. eCollection 2022 Oct-Dec.
7
Validity and Reliability of the Scale to Report Emotional Stress Signs-Multiple Sclerosis (STRESS-MS) in Assessing Abuse and Neglect of Adults With Multiple Sclerosis.用于报告情绪应激迹象的量表——多发性硬化症(STRESS-MS)在评估多发性硬化症成年患者受虐待和忽视情况时的效度和信度
Int J MS Care. 2022 Jan-Feb;24(1):18-24. doi: 10.7224/1537-2073.2020-016. Epub 2021 Jun 30.
8
Physical Activity Together for People With Multiple Sclerosis and Their Care Partners: Protocol for a Feasibility Randomized Controlled Trial of a Dyadic Intervention.多发性硬化症患者及其护理伙伴共同参与体育活动:一项二元干预可行性随机对照试验的方案
JMIR Res Protoc. 2021 Jun 1;10(6):e18410. doi: 10.2196/18410.
9
Advances in the management of relapsing-remitting multiple sclerosis: role of oral dimethyl fumarate (BG-12).复发缓解型多发性硬化症治疗进展:口服富马酸二甲酯(BG-12)的作用
Degener Neurol Neuromuscul Dis. 2015 May 21;5:51-61. doi: 10.2147/DNND.S68723. eCollection 2015.
10
Measuring burden in caregivers of people with multiple sclerosis: psychometric properties of the CSI questionnaire.测量多发性硬化症患者照顾者的负担:CSI问卷的心理测量特性
Patient Prefer Adherence. 2019 Jan 9;13:101-106. doi: 10.2147/PPA.S180863. eCollection 2019.