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斯里兰卡创伤性脊髓损伤患者使用的应对策略:一项焦点小组研究。

Coping strategies used by traumatic spinal cord injury patients in Sri Lanka: a focus group study.

作者信息

Arya Sumedha, Xue Siqi, Embuldeniya Amanda, Narammalage Harsha, da Silva Tricia, Williams Shehan, Ravindran Arun

机构信息

a Faculty of Medicine, University of Toronto , Toronto , Ontario , Canada ;

b Department of Psychiatry, Faculty of Medicine , University of Kelaniya , Ragama , Sri Lanka ;

出版信息

Disabil Rehabil. 2016 Oct;38(20):2008-15. doi: 10.3109/09638288.2015.1111433. Epub 2016 Jan 5.

Abstract

PURPOSE

Psychosocial consequences of traumatic spinal cord injury (SCI) have been well documented in Western populations, but there is no published literature on such incidence in the Sri Lankan population. The purpose of this study was to explore the psychosocial impact of SCI in a Sri Lankan population and to examine this population's coping mechanisms.

METHODS

Participants were recruited purposively at the Ragama Rheumatology and Rehabilitation Hospital, the sole rehabilitation facility for SCI patients in Sri Lanka. Focus groups were conducted with 23 consenting individuals. Interview transcripts were analysed using descriptive thematic analysis.

RESULTS

Four domains of life impact, three types of active coping strategies and four types of external supports were identified. Decreased ambulation and burden on family life were significant concerns for male and female participants alike. Religious practices were reported most frequently as active coping strategies, followed by positive reframing and goal-setting. Reported external supports included guided physiotherapy, informational workshops, social support and peer networks.

CONCLUSION

Rehabilitation efforts for Sri Lankan SCI patients should be sensitive to psychosocial concerns in addition to physical concerns in order to help patients re-integrate into their family lives and community. Furthermore, religious practices should be respected as possible aids to rehabilitation. Implications for Rehabilitation Rehabilitative efforts should be conscientious of patients' psychosocial well-being in addition to their physical well-being. Hospital-based rehabilitative efforts for traumatic spinal cord injury patients should promote functional independence and community re-integration. Spiritual and/or religious practices should be respected as ways by which traumatic spinal cord injury patients may confront personal challenges that arise following injury.

摘要

目的

创伤性脊髓损伤(SCI)的社会心理后果在西方人群中已有充分记录,但关于斯里兰卡人群中此类发病率的文献尚未发表。本研究的目的是探讨SCI对斯里兰卡人群的社会心理影响,并考察该人群的应对机制。

方法

在斯里兰卡唯一的SCI患者康复机构拉贾马风湿病与康复医院有目的地招募参与者。对23名同意参与的个体进行了焦点小组访谈。使用描述性主题分析对访谈记录进行分析。

结果

确定了生活影响的四个领域、三种积极应对策略类型和四种外部支持类型。步行能力下降和家庭生活负担对男性和女性参与者来说都是重大问题。宗教活动被报告为最常见的积极应对策略,其次是积极的重新构建和目标设定。报告的外部支持包括有指导的物理治疗、信息研讨会、社会支持和同伴网络。

结论

斯里兰卡SCI患者的康复工作除了关注身体问题外,还应关注社会心理问题,以帮助患者重新融入家庭生活和社区。此外,宗教活动应被视为可能有助于康复的方式。对康复的启示 康复工作除了关注患者的身体健康外,还应关注其社会心理健康。针对创伤性脊髓损伤患者的医院康复工作应促进功能独立和社区重新融入。精神和/或宗教活动应被视为创伤性脊髓损伤患者应对受伤后出现的个人挑战的方式而受到尊重。

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