Yale School of Medicine, New Haven, CT, USA.
President, More Than Walking, Stratford, CT, USA.
Yale J Biol Med. 2024 Sep 30;97(3):271-280. doi: 10.59249/YXEB6783. eCollection 2024 Sep.
: To identify factors impacting survivorship among people living with spinal cord injury (SCI) and volunteering in a peer mentorship program. : Semi-structured interviews were conducted by a leader of a non-profit organization designed to promote independent living after SCI. Questions explored intrinsic factors such as resilience and emotional coping as well extrinsic factors such as family support and accessibility challenges that impacted their SCI survivorship journey. Two independent anonymous reviewers conducted thematic analysis to identify these factors. : Twenty-eight members of the SCI peer mentorship program participated. Four themes affecting survivorship were identified: , , , and . Nearly all participants focused their responses on and as reasons for their interest in serving as peer mentors. : This study highlights a need for peer community integration following SCI and underscores the importance of using a community-driven participatory model to inform and guide research. Peer mentorship programs can link SCI survivors to mentors and facilitate other sources of social fulfillment and thus can have a profound impact on individuals' survivorship post-SCI. This study identified a , , , and as factors that most impact the SCI survivorship journey. This community leader's work underscores the importance of cognitive framing and social networks in post-injury rehabilitation in this population. Future directions include analyzing the longitudinal effects of peer mentorship participation on life satisfaction and community building in individuals living with SCI.
: 确定影响脊髓损伤（SCI）患者参与同辈导师计划的生存因素。: 由一家非营利组织的领导人进行了半结构化访谈，该组织旨在促进 SCI 后的独立生活。问题探讨了内在因素，如韧性和情绪应对，以及外在因素，如家庭支持和无障碍挑战，这些因素影响了他们的 SCI 生存之旅。两名独立的匿名评论员进行了主题分析以确定这些因素。: 28 名 SCI 同辈导师计划的成员参与了研究。确定了影响生存的四个主题：个人因素、社会支持、参与动机和服务提供。几乎所有参与者都将和作为他们对担任同辈导师感兴趣的原因。: 这项研究强调了 SCI 后同辈社区融入的必要性，并强调了使用社区驱动的参与式模型为研究提供信息和指导的重要性。同辈导师计划可以将 SCI 幸存者与导师联系起来，并促进其他社交满足的来源，从而对个人的 SCI 后生存产生深远影响。本研究确定了个人因素、社会支持、参与动机和服务提供作为影响 SCI 生存之旅的最重要因素。这位社区领袖的工作强调了认知框架和社交网络在这一人群受伤后康复中的重要性。未来的方向包括分析同辈导师参与对生活满意度和 SCI 患者社区建设的纵向影响。
