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在不可预测的日常生活中前行:关于与患有严重精神疾病的父母一起生活的儿童经历的元综合研究

Navigating in an unpredictable daily life: a metasynthesis on children's experiences living with a parent with severe mental illness.

作者信息

Dam Kristianna, Hall Elisabeth O C

机构信息

Department of Nursing, Faculty of Natural and Health Sciences, University of the Faroe Islands, Torshavn, The Faroe Islands.

Section of Nursing, Department of Public Health, Health, Aarhus University, Aarhus, Denmark.

出版信息

Scand J Caring Sci. 2016 Sep;30(3):442-57. doi: 10.1111/scs.12285. Epub 2016 Jan 13.

Abstract

A large group of individuals suffering from mental illness are parents living with their children. These children are invisible in the health care even though at risk for illhealth. The aim of this metasynthesis was to advance knowledge of how children of parents with mental illness experience their lives, thus contributing to the evidence of this phenomenon. The metasynthesis is following Sandelowski and Barroso's guidelines. Literature searches covering the years 2000 to 2013 resulted in 22 reports which were synthesised into the theme 'navigating in an unpredictable everyday life' and the metaphor compass. Children of parents with mental illness irrespective of age are responsible, loving and worrying children who want to do everything to help and support. Children feel shame when the parent behaves differently, and they conceal their family life being afraid of stigmatisation and bullying. When their parent becomes ill, they distance to protect themselves. The children cope through information, knowledge, frankness and trustful relationships. These children need support from healthcare services because they subjugate own needs in favour of the parental needs, they should be encouraged to talk about their family situation, and especially, young children should to be child-like, playing and seeing friends.

摘要

很大一部分患有精神疾病的人是与子女同住的父母。这些孩子在医疗保健中不被关注,尽管他们有健康风险。这项元综合研究的目的是增进对患有精神疾病的父母的子女如何体验生活的了解,从而为这一现象提供证据。该元综合研究遵循桑德洛斯基和巴罗索的指导方针。对2000年至2013年的文献检索产生了22份报告,这些报告被综合成“在不可预测的日常生活中导航”这一主题和“指南针”这一隐喻。患有精神疾病的父母的子女,无论年龄大小,都是有责任感、充满爱心且忧心忡忡的孩子,他们想尽一切办法提供帮助和支持。当父母行为异常时,孩子们会感到羞耻,并且他们会因为害怕被污名化和欺负而隐瞒自己的家庭生活。当父母生病时,他们会保持距离以保护自己。孩子们通过信息、知识、坦诚和信任的关系来应对。这些孩子需要医疗服务的支持,因为他们压抑自己的需求以满足父母的需求,应该鼓励他们谈论自己的家庭情况,尤其是年幼的孩子应该像孩子一样玩耍并与朋友交往。

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