界定公众参与的范围：审视公共卫生基因组学中的“不知情权”
Defining the Scope of Public Engagement: Examining the "Right Not to Know" in Public Health Genomics.
作者信息
Allen Clarissa, Sénécal Karine, Avard Denise
机构信息
Research Assistant at the Center of Genomics and Policy, located within the McGill University/Genome Quebec Innovation Center in Montreal, Quebec.
Academic Associate at the Centre of Genomics and Policy in the Faculty of Medicine at McGill University in Montreal, Québec.
出版信息
J Law Med Ethics. 2014 Spring;42(1):11-8. doi: 10.1111/jlme.12114.
In this article, we explore the concept of a "right not to know" on a population rather than individual level. We argue that a population level "right not to know" is a useful concept for helping to define the appropriate boundaries of public engagement initiatives in the emerging public health genomics context.
在本文中，我们探讨的是群体层面而非个体层面的“不知情权”概念。我们认为，群体层面的“不知情权”是一个有用的概念，有助于在新兴的公共卫生基因组学背景下界定公众参与倡议的适当界限。
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