van Wijngaarden Els, Leget Carlo, Goossensen Anne
University of Humanistic Studies, Care and Well-being, Utrecht, The Netherlands.
BMJ Open. 2016 Jan 18;6(1):e009895. doi: 10.1136/bmjopen-2015-009895.
The aim of this paper is to provide insight into what it means to live with the intention to end life at a self-chosen moment from an insider perspective.
Participants who lived independent or semidependent throughout the Netherlands.
25 Dutch older citizens (mean age of 82 years) participated. They were ideating on a self-chosen death because they considered their lives to be no longer worth living. Inclusion criteria were that they: (1) considered their lives to be 'completed'; (2) suffered from the prospect of living on; (3) currently wished to die; (4) were 70 years of age or older; (5) were not terminally ill; (6) considered themselves to be mentally competent; (7) considered their death wish reasonable.
In this qualitative study, in-depth interviews were carried out in the participants' everyday home environment (median lasting 1.56 h). Verbatim transcripts were analysed based on the principles of phenomenological thematic analysis.
The liminality or 'in-betweenness' of intending and actually performing self-directed death (or not) is characterised as a constant feeling of being torn explicated by the following pairs of themes: (1) detachment and attachment; (2) rational and non-rational considerations; (3) taking control and lingering uncertainty; (4) resisting interference and longing for support; (5) legitimacy and illegitimacy.
Our findings show that the in-between period emerges as a considerable, existential challenge with both rational and non-rational concerns and thoughts, rather than a calculative, coherent sum of rational considerations. Our study highlights the need to take due consideration of all ambiguities and ambivalences present after a putatively rational decision has been made in order to develop careful policy and support for this particular group of older people.
本文旨在从内部视角深入探讨在有意选择在某个时刻结束生命的情况下生活意味着什么。
参与者在荷兰各地独立或半独立生活。
25名荷兰老年公民(平均年龄82岁)参与了研究。他们正在考虑选择死亡,因为他们认为自己的生命已不再值得活下去。纳入标准为:(1)认为自己的生命“已完成”;(2)对继续活下去感到痛苦;(3)目前希望死亡;(4)年龄在70岁及以上;(5)并非身患绝症;(6)认为自己精神健全;(7)认为自己的死亡愿望合理。
在这项定性研究中,在参与者日常的家庭环境中进行了深入访谈(中位数时长为1.56小时)。根据现象学主题分析原则对逐字记录进行了分析。
有意并实际实施(或不实施)自我导向死亡之间的阈限性或“中间状态”,其特征表现为一种持续的矛盾感,具体体现为以下几对主题:(1)超脱与依恋;(2)理性与非理性考量;(3)掌控与挥之不去的不确定性;(4)抗拒干扰与渴望支持;(5)合法性与非法性。
我们的研究结果表明,这个中间阶段是一个重大的、关乎生存的挑战,涉及理性和非理性的担忧与想法,而非理性考量的简单累加。我们的研究强调,在做出看似理性的决定后,需要充分考虑所有存在的模糊性和矛盾性,以便为这一特定老年人群体制定谨慎的政策并提供支持。