Ruseckaite Rasa, Beckmann Kerri, O'Callaghan Michael, Roder David, Moretti Kim, Zalcberg John, Millar Jeremy, Evans Sue
Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, VIC, Australia.
Centre for Population Health, Sansom Institute for Health Research, University of South Australia, Adelaide, SA, Australia.
BMC Res Notes. 2016 Jan 22;9:37. doi: 10.1186/s13104-016-1855-3.
Prostate cancer is the most commonly diagnosed and prevalent malignancy reported to Australian cancer registries, with numerous studies from single institutions summarizing patient outcomes at individual hospitals or States. In order to provide an overview of patterns of care of men with prostate cancer across multiple institutions in Australia, a specialized dataset was developed. This dataset, containing amalgamated data from South Australian and Victorian prostate cancer registries, is called the South Australian-Victorian Prostate Cancer Health Outcomes Research Dataset (SA-VIC PCHORD).
A total of 13,598 de-identified records of men with prostate cancer diagnosed and consented between 2008 and 2013 in South Australia and Victoria were merged into the SA-VIC PCHORD. SA-VIC PCHORD contains detailed information about socio-demographic, diagnostic and treatment characteristics of patients with prostate cancer in South Australia and Victoria. Data from individual registries are available to researchers and can be accessed under individual data access policies in each State.
The SA-VIC PCHORD will be used for numerous studies summarizing trends in diagnostic characteristics, survival and patterns of care in men with prostate cancer in Victoria and South Australia. It is expected that in the future the SA-VIC PCHORD will become a principal component of the recently developed bi-national Australian and New Zealand Prostate Cancer Outcomes Registry to collect and report patterns of care and standardised patient reported outcome measures of men nation-wide in Australia and New Zealand.
前列腺癌是澳大利亚癌症登记处报告的最常被诊断和普遍存在的恶性肿瘤，许多来自单一机构的研究总结了个别医院或州的患者治疗结果。为了概述澳大利亚多个机构中前列腺癌男性患者的护理模式，开发了一个专门的数据集。这个数据集包含来自南澳大利亚和维多利亚州前列腺癌登记处的合并数据，被称为南澳大利亚 - 维多利亚州前列腺癌健康结果研究数据集（SA-VIC PCHORD）。
2008年至2013年期间在南澳大利亚和维多利亚州诊断并同意参与的13598例去识别化前列腺癌男性患者记录被合并到SA-VIC PCHORD中。SA-VIC PCHORD包含南澳大利亚和维多利亚州前列腺癌患者的社会人口统计学、诊断和治疗特征的详细信息。研究人员可以获取各个登记处的数据，并可根据每个州的个人数据访问政策进行访问。
SA-VIC PCHORD将用于多项研究，总结维多利亚州和南澳大利亚州前列腺癌男性患者的诊断特征、生存率和护理模式趋势。预计未来SA-VIC PCHORD将成为最近开发的澳大利亚和新西兰前列腺癌结果双国家登记处的主要组成部分，以收集和报告澳大利亚和新西兰全国范围内前列腺癌男性患者的护理模式和标准化患者报告结局指标。
