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超越生物医学:结核病预防中的关系与照护

Beyond Biomedicine: Relationships and Care in Tuberculosis Prevention.

作者信息

Mason Paul H, Degeling Chris

机构信息

Woolcock Institute of Medical Research, University of Sydney, Sydney, Australia.

Centre for Values, Ethics and the Law in Medicine, University of Sydney, Sydney, Australia.

出版信息

J Bioeth Inq. 2016 Mar;13(1):31-4. doi: 10.1007/s11673-015-9697-6. Epub 2016 Feb 2.

Abstract

With attention to the experiences, agency, and rights of tuberculosis (TB) patients, this symposium on TB and ethics brings together a range of different voices from the social sciences and humanities. To develop fresh insights and new approaches to TB care and prevention, it is important to incorporate diverse perspectives from outside the strictly biomedical model. In the articles presented in this issue of the Journal of Bioethical Inquiry, clinical experience is married with historical and cultural context, ethical concerns are brought to bear on global health, and structural analyses shed light upon the lived experience of people living with TB. The relational and reciprocal dimensions of care feature strongly in these discussions, which serve as a poignant reminder that behind each of the yearly deaths from TB is a deeply personal story. No single discipline holds a monopoly on how to care for each of these people, but strong cases are made for support from mental health and social workers in addressing the kaleidoscope of needs in TB prevention. As the World Health Organization moves towards the goal of eliminating TB globally by 2050, attending to the needs of TB patients serves global interests to lower disease burden and to develop better integrated communities worldwide.

摘要

关注结核病患者的经历、能动性和权利,本次结核病与伦理学研讨会汇聚了社会科学和人文学科的一系列不同声音。为了对结核病的治疗和预防形成新的见解和方法,纳入严格生物医学模式之外的多元视角很重要。在本期《生物伦理探究杂志》发表的文章中,临床经验与历史和文化背景相结合,伦理关切应用于全球健康,结构分析揭示了结核病患者的生活经历。护理的关系性和互惠性维度在这些讨论中非常突出,这有力地提醒我们,每年死于结核病的每一个人背后都有一个深刻的个人故事。没有任何一个学科对如何照顾这些人拥有垄断权,但有充分理由支持心理健康和社会工作者参与满足结核病预防中千变万化的需求。随着世界卫生组织朝着到2050年在全球消除结核病的目标迈进,关注结核病患者的需求符合降低疾病负担和在全球建立更具融合性社区的全球利益。

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