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囊性纤维化的流行病学

Epidemiology of Cystic Fibrosis.

作者信息

Spoonhower Kimberly A, Davis Pamela B

机构信息

Department of Pediatrics (retired), Case Western Reserve University School of Medicine, 2109 Adelbert Road, Cleveland, OH 44106, USA.

Case Western Reserve University School of Medicine, Dean's Office, 2109 Adelbert Road, Cleveland, OH 44106, USA.

出版信息

Clin Chest Med. 2016 Mar;37(1):1-8. doi: 10.1016/j.ccm.2015.10.002.

Abstract

Improved quality of care and rapidly emerging therapeutic strategies to restore chloride transport profoundly impact the epidemiology and pathobiology of cystic fibrosis (CF) in the twenty-first century. CF now serves as a model for chronic illness management, continuous quality improvement via registry data, and a seamless link between basic science research, translational studies, clinical trials, and outcomes research to enable rapid expansion of treatment options.

摘要

护理质量的提高以及迅速涌现的恢复氯离子转运的治疗策略,对21世纪囊性纤维化(CF)的流行病学和病理生物学产生了深远影响。CF如今已成为慢性病管理、通过登记数据持续提高质量,以及基础科学研究、转化研究、临床试验和结果研究之间无缝衔接以实现治疗选择快速扩展的典范。

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