Ruddy Kathryn J, Greaney Mary L, Sprunck-Harrild Kim, Meyer Meghan E, Emmons Karen M, Partridge Ann H
Department of Oncology, Mayo Clinic, Rochester, Minnesota, USA.
Department of Kinesiology, University of Rhode Island, Kingston, Rhode Island, USA.
J Community Support Oncol. 2015 Sep;13(9):323-9. doi: 10.12788/jcso.0169.
Young women with breast cancer face different challenges than those faced by older women because of their age and life stage, yet few studies have focused on the different challenges faced by women from diverse populations.
To explore existing supports that are important during diagnosis and treatment and the unmet needs for information and support in young women with breast cancer.
We conducted 20 semistructured interviews in English with women aged 42 or younger who had been diagnosed with stage I-III invasive breast cancer within the previous 4 years. We recorded and transcribed the interviews and used collaborative group immersion/ crystallization to analyze data, identify emergent themes, and determine if there were differences by race/ethnicity.
20 participants, recruited from 9 US states and Canada, were interviewed, of whom 25% were Hispanic, 15% were black, 50% were white and non-Hispanic, and 10% were another race/ethnicity. Faith and/or spirituality and family were reported as important sources of support by many of the participants. Most of them lamented the inadequacy of their connections with other young survivors and also of supports for their family. Some recommended that young patients be provided with more information about: treatment-related physical and emotional changes; fertility and menopause; relationships after cancer; navigating work challenges; and transitioning into survivorship. None of these supports or recommendations was limited to a specific race/ethnicity or geographic region.
Small sample size, exclusion of non-English speakers. Conclusions Key informant interviews of young breast cancer survivors identified similar needs for education and support across various races/ethnicities and geographies.
Key informant interviews of young breast cancer survivors identified similar needs for education and support across various races/ethnicities and geographies.
患有乳腺癌的年轻女性由于其年龄和生活阶段，面临着与老年女性不同的挑战，但很少有研究关注不同人群中女性所面临的不同挑战。
探讨在诊断和治疗期间重要的现有支持措施，以及患有乳腺癌的年轻女性在信息和支持方面未得到满足的需求。
我们用英语对年龄在42岁及以下、在过去4年内被诊断为I - III期浸润性乳腺癌的女性进行了20次半结构式访谈。我们对访谈进行了录音和转录，并使用协作小组沉浸式/结晶法分析数据，确定新出现的主题，并确定是否存在种族/民族差异。
从美国9个州和加拿大招募了20名参与者进行访谈，其中25%为西班牙裔，15%为黑人，50%为非西班牙裔白人，10%为其他种族/民族。许多参与者表示，信仰和/或精神寄托以及家庭是重要的支持来源。她们中的大多数人都感叹与其他年轻幸存者的联系不足，以及对其家人的支持也不足。一些人建议为年轻患者提供更多关于以下方面的信息：与治疗相关的身体和情绪变化；生育和更年期；癌症后的人际关系；应对工作挑战；以及过渡到癌症幸存者阶段。这些支持措施或建议均不限于特定的种族/民族或地理区域。
样本量小，排除了非英语使用者。结论对年轻乳腺癌幸存者的关键信息提供者访谈表明，不同种族/民族和地区的人在教育和支持方面有相似的需求。
对年轻乳腺癌幸存者的关键信息提供者访谈表明，不同种族/民族和地区的人在教育和支持方面有相似的需求。
