Department of Medical Psychology, Amsterdam University Medical Center, Cancer Center Amsterdam, Meibergdreef 9, 1105 AZ, Amsterdam, Netherlands.
Department of Sexology and Psychosomatic Gynecology, Amsterdam University Medical Center, Meibergdreef 9, 1105 AZ, Amsterdam, Netherlands.
J Cancer Surviv. 2022 Aug;16(4):913-924. doi: 10.1007/s11764-021-01084-w. Epub 2021 Oct 20.
Young adult cancer patients and survivors have age-specific care needs, but care needs related to sexual health are poorly understood. A systematic literature review was conducted to examine sexual health-related care needs among patients/survivors diagnosed with cancer during young adulthood (age: 18-39 years). The prevalence and types needs were assessed along with associated patient factors.
Four major databases were screened to identify relevant studies, which were also assessed for risk of bias; all following PRISMA guidelines.
Identified studies (N = 35) often assessed sexual health-related care needs by whether participants experienced a generic need for support from providers. The prevalence of such needs ranged between 8 and 61.7% and was higher in female survivors and those with more health impairments. The type of diagnosis could also play a role in these varying prevalence rates, but was not systematically tested in included studies. Types of sexual health-related care needs were clustered into practical/emotional support needs (e.g., coping with physical side effects), information needs (e.g., more details), and communication needs (e.g., providers should initiate conversations, validate concerns, be empathetic/open). Needs should be addressed in-person and/or online.
The extent of needs related to sexual health varies among young adult patients and survivors, but types of needs center around improving provision of support and information by providers.
Sexual health should routinely be addressed alongside other potential effects of cancer treatment to allow for constructive conversations between patients and providers. Referrals to (online) resources or specialists should be tailored to individual preferences.
青年癌症患者和幸存者有特定于年龄的护理需求，但对与性健康相关的护理需求了解甚少。进行了系统的文献回顾，以检查在青年时期（18-39 岁）被诊断患有癌症的患者/幸存者的性健康相关护理需求。评估了患病率和需求类型，以及相关的患者因素。
筛选了四个主要数据库以确定相关研究，并对这些研究进行了偏倚风险评估；所有研究均遵循 PRISMA 指南。
确定的研究（N=35）通常通过参与者是否经历提供者支持的一般需求来评估与性健康相关的护理需求。这种需求的患病率在 8%至 61.7%之间，女性幸存者和健康受损程度较高的患者中更高。诊断类型也可能在这些不同的患病率中起作用，但在纳入的研究中未系统测试。与性健康相关的护理需求类型分为实用/情感支持需求（例如，应对身体副作用）、信息需求（例如，更多细节）和沟通需求（例如，提供者应主动发起对话，验证关注，富有同情心/开放）。需求应亲自或在线解决。
与性健康相关的需求在青年患者和幸存者中的程度不同，但需求类型主要围绕着提高提供者的支持和信息提供。
性健康应与癌症治疗的其他潜在影响一起定期解决，以促进患者和提供者之间的建设性对话。应根据个人喜好向（在线）资源或专家进行转诊。
