Lindgren Lea H, Schmiegelow Kjeld, Helms Anne Sofie, Thorsteinsson Troels, Larsen Hanne B
Department of Paediatrics and Adolescent Medicine, The University Hospital (Rigshospitalet), Copenhagen, Denmark.
Institute of Clinical Medicine, The Faculty of Medicine, University of Copenhagen, Denmark.
Psychooncology. 2017 Jan;26(1):37-43. doi: 10.1002/pon.4094. Epub 2016 Feb 12.
Extended hospitalization for school-aged cancer patients increases their risk of social marginalization. School-aged children mature through peer-interaction, but healthcare providers fail to incorporate this in rehabilitation efforts. The RESPECT study offers classmates to cancer patients to become ambassadors during hospital stays. This study explores classmate decision-making patterns about ambassadorship.
An open-ended question was prospectively and consecutively provided to classmates (N = 221) (and parents) of 10 children diagnosed with cancer in 2014 and enrolled in the RESPECT study. Statements were analysed using thematic content analysis.
Of 221 classmates, 140 responded (63%). Of these, 81 applied for ambassadorship (median 8/patient), 58 declined, one was undecided. Nine forms were incomplete; leaving 131 in total that revealed 303 statements for analysis. Five major themes emerged: existing friendship (132/303 statements), personal resources (academic, emotional and social) (107/303), attitudes towards the ambassadorship (34/303), hospital environment (18/303) and logistics (12/303). Of the classmates with pre-existing friendships, 77% applied for ambassadorship and 80% with a surplus of personal resources applied. These were predominant predictors for ambassadorship application. Classmate motives were condensed into four archetypes: pre-existing friendship with a surplus of resources (100% applied), non-friend classmates with a surplus of resources (63% applied), pre-existing friendship with limited resources (22% applied) and non-friend classmates with limited resources (0% applied).
Classmates are highly motivated to support patients during serious illness, irrespective of pre-existing friendships. Ambassadors offer a novel in-hospital approach to promote rehabilitation in children with severe/chronic diseases. Results need validation in other settings. Copyright © 2016 John Wiley & Sons, Ltd.
学龄期癌症患者住院时间延长会增加其社会边缘化风险。学龄儿童通过同伴互动实现成长，但医疗服务提供者在康复工作中未能纳入这一点。“尊重”研究为癌症患者提供同学，让他们在住院期间成为大使。本研究探讨同学关于担任大使的决策模式。
对2014年确诊患有癌症并参加“尊重”研究的10名儿童的同学（N = 221）（及家长）前瞻性且连续地提出一个开放式问题。使用主题内容分析法对陈述进行分析。
221名同学中，140人做出回应（63%）。其中，81人申请担任大使（中位数为每位患者8人），58人拒绝，1人未决定。9份表格不完整；最终共131份表格，包含303条陈述用于分析。出现了五个主要主题：现存友谊（303条陈述中的132条）、个人资源（学业、情感和社交方面）（303条中的107条）、对担任大使的态度（303条中的34条）、医院环境（303条中的18条）和后勤安排（303条中的12条）。在有现存友谊的同学中，77%申请担任大使，在个人资源充足的同学中，80%申请担任大使。这些是申请担任大使的主要预测因素。同学的动机浓缩为四种原型：有充足资源的现存友谊（100%申请）、有充足资源的非朋友同学（63%申请）、资源有限的现存友谊（22%申请）和资源有限的非朋友同学（0%申请）。
无论是否有现存友谊，同学们都有很高的积极性在重病期间支持患者。大使们提供了一种新的院内方法来促进重症/慢性病患儿的康复。结果需要在其他环境中进行验证。版权所有© 2016约翰·威利父子有限公司。
