Slater Penelope J
Oncology Services Group, Queensland Children's Hospital, South Brisbane, Queensland, Australia.
J Patient Exp. 2020 Aug;7(4):570-576. doi: 10.1177/2374373519870363. Epub 2019 Aug 21.
The Discovery Interview methodology was introduced to Oncology Services Group in 2012 as a service improvement strategy and was evaluated positively by staff and families. It enabled clinical staff to hear the deidentified families' stories, understand their experience, and implement process and practice enhancements.
This study collected family stories following treatment for childhood cancer at the tertiary center in Queensland, with the goal of raising awareness and improving family experience.
Twenty-five families were interviewed via an interview spine which covered the major stages of cancer treatment and themes were extracted.
Major themes were psychological support needs, adapting to the new normal, and rebuilding relationships. After treatment, the parent had time to reflect on their experience and lost the reassurance of regularly attending the tertiary hospital. There was ongoing anxiety regarding relapse. Parents reported various coping strategies and some wanted to maintain contact with other oncology families. Families strived to get back to a level of normality such as attending school and experienced some challenges in relationships with family and friends.
Families needed support and reassurance from their local health professionals to navigate the ongoing challenges following treatment.
2012年，“发现访谈”方法作为一种服务改进策略被引入肿瘤服务集团，并得到了工作人员和患者家属的积极评价。它使临床工作人员能够倾听身份信息已被去除的患者家属的故事，了解他们的经历，并改进流程和实践。
本研究收集了昆士兰三级医疗中心儿童癌症患者治疗后的家属故事，旨在提高认识并改善家属体验。
通过涵盖癌症治疗主要阶段的访谈提纲对25个家庭进行了访谈，并提取了主题。
主要主题包括心理支持需求、适应新常态以及重建人际关系。治疗后，家长有时间反思他们的经历，不再能从定期前往三级医院中获得安心感。对复发仍存在持续的焦虑。家长们报告了各种应对策略，一些家长希望与其他肿瘤患者家庭保持联系。家庭努力恢复到正常状态，比如让孩子上学，但在与家人和朋友的关系中遇到了一些挑战。
患者家庭需要当地医疗专业人员的支持和安心感，以应对治疗后持续存在的挑战。
