Tod Angela Mary, Kennedy Fiona, Stocks Amanda-Jayne, McDonnell Ann, Ramaswamy Bhanu, Wood Brendan, Whitfield Malcolm
School of Nursing and Midwifery, The University of Sheffield, Sheffield, UK.
Psychosocial Oncology & Clinical Practice Research Group, University of Leeds, Leeds, UK.
BMJ Open. 2016 Feb 16;6(2):e006813. doi: 10.1136/bmjopen-2014-006813.
The study examines the meaning of good-quality social care for people with Parkinson's disease and their carers. It identifies, from their perspective, the impact of good-quality social care on health and well-being.
Qualitative case study methodology, interview and framework analysis techniques were used.
community locations in the north and midlands of England.
Data were collected from 43 participants including individual interviews with people with Parkinson's disease (n=4), formal and informal social care providers (n=13), 2 focus groups, 1 with people with Parkinson's disease and their carers (n=17), and 1 with professionals (n=8), plus a telephone interview with a former commissioner.
Good-quality social care, delivered in a timely fashion, was reported to have a positive impact on health. Furthermore, there is an indication that good-quality social care can prevent untoward events, such as infections, symptom deterioration and deterioration in mental health. The concept of the 'Impact Gap' developed from the findings, illustrates how the costs of care may be reduced by delivering good-quality social care. Control, choice and maintaining independence emerged as indicators of good-quality social care, irrespective of clinical condition. Participants identified characteristics indicative of good-quality social care specific to Parkinson's disease, including understanding Parkinson's disease, appropriate administration of medication, timing of care and reassessment. 'Parkinson's aware' social care was seen to generate psychological, physical and social benefits that were inter-related.
The findings indicate how maximising quality in social care delivery for people with Parkinson's disease can impact on health and well-being. Long-term or short-term benefits may result in prevented events and reductions in health and social care resource. Health professionals can be instrumental in early detection of and signposting to social care.
本研究探讨优质社会护理对帕金森病患者及其照料者的意义。从他们的角度确定优质社会护理对健康和幸福的影响。
采用定性案例研究方法、访谈和框架分析技术。
英格兰北部和中部的社区。
从43名参与者那里收集了数据，包括对帕金森病患者的个人访谈（n = 4）、正式和非正式社会护理提供者（n = 13）、2个焦点小组，其中1个是与帕金森病患者及其照料者（n = 17），另1个是与专业人员（n = 8），另外还有对一位前专员的电话访谈。
据报告，及时提供的优质社会护理对健康有积极影响。此外，有迹象表明优质社会护理可以预防不良事件，如感染、症状恶化和心理健康恶化。从研究结果中得出的“影响差距”概念说明了如何通过提供优质社会护理来降低护理成本。控制、选择和保持独立成为优质社会护理的指标，与临床状况无关。参与者确定了帕金森病特有的优质社会护理的特征，包括对帕金森病的了解、药物的适当管理、护理时间和重新评估。“了解帕金森病”的社会护理被认为能产生相互关联的心理、身体和社会益处。
研究结果表明，为帕金森病患者提供的社会护理质量最大化如何能对健康和幸福产生影响。长期或短期的益处可能导致预防不良事件以及减少健康和社会护理资源。卫生专业人员在早期发现和引导患者接受社会护理方面可以发挥作用。
