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“癌症让我的生活停滞不前”:结直肠癌确诊12个月后中年成年人面临的工作相关挑战

"Cancer Put My Life on Hold": Work-Related Challenges Among Middle-aged Adults 12 Months After a Diagnosis of Colorectal Cancer.

作者信息

McGrath Catherine, Mihala Gabor, Beesley Vanessa L, Lynch Brigid M, Graves Nicholas, Gordon Louisa G

机构信息

Author Affiliations: The University of Sydney, Camperdown, Sydney (Ms McGrath); Griffith University, Menzies Health Institute Queensland, Centre for Applied Health Economics, Logan (Mr Mihala and Dr Gordon); QIMR Berghofer Medical Research Institute, Gynaecological Cancers Group (Dr Beesley); and Queensland University of Technology, School of Public Health and Social Work, Brisbane (Drs Graves and Beesley); and Cancer Epidemiology Centre, Cancer Council Victoria (Dr Lynch); Melbourne School of Population and Global Health, The University of Melbourne (Dr Lynch); Physical Activity Laboratory, Baker IDI Heart and Diabetes Institute (Dr Lynch), Melbourne, Australia.

出版信息

Cancer Nurs. 2017 Mar/Apr;40(2):160-167. doi: 10.1097/NCC.0000000000000359.

DOI:10.1097/NCC.0000000000000359
PMID:26925997
Abstract

BACKGROUND

Colorectal cancer affects a wide range of working-age people. Little is known about the consequent work limitations.

OBJECTIVE

The aim of this study was to understand the extent and changing nature of work-related limitations of middle-aged (45-64 years) people over the first 12 months of colorectal cancer.

METHODS

Surveys were administered to participants recruited via the Queensland Cancer Registry, at 6 and 12 months after diagnosis. Among those who returned to work, the Work Limitations Questionnaire measured 4 job performance domains (time management, physical, mental-interpersonal, and output demands) and an overall productivity score. Open-ended questions supplemented the Work Limitations Questionnaire, and responses were thematically analyzed.

RESULTS

Of 239 participants, 8% did not continue in the study, and 20% left employment by 12 months, leaving 171 participants eligible for this analysis. Open-ended responses for why participants stopped work included bowel problems and stoma, loss of strength, and medication adverse effects. At 12 months, 22% to 39% of participants reported work limitations, but there was no overall significant change in work limitations between 6 and 12 months. Qualitative data highlighted the key work-related issues were changes in work functioning, attitudes of employers and colleagues, financial pressures, and emotional responses.

CONCLUSIONS

While a significant proportion left work because of treatment-related problems, and the majority of participants did not experience workplace limitations, some reported considerable work-related challenges.

IMPLICATIONS FOR PRACTICE

Discussions with health professionals about the possible impact of treatment adverse effects on employment, good communication with employers, and workplace flexibility may facilitate return to work for this population.

摘要

背景

结直肠癌影响众多工作年龄段的人群。对于由此导致的工作限制知之甚少。

目的

本研究旨在了解中年(45 - 64岁)结直肠癌患者在确诊后的前12个月内与工作相关的限制的程度及变化性质。

方法

通过昆士兰癌症登记处招募参与者,并在诊断后的6个月和12个月进行调查。在那些重返工作岗位的人中,工作限制问卷测量了4个工作绩效领域(时间管理、身体、心理人际和产出要求)以及一个总体生产力得分。开放式问题对工作限制问卷进行补充,并对回答进行主题分析。

结果

239名参与者中,8%未继续参与研究,20%在12个月时离职,剩余171名参与者符合本分析条件。关于参与者停止工作原因的开放式回答包括肠道问题和造口、体力下降以及药物不良反应。在12个月时,22%至39%的参与者报告有工作限制,但在6个月至12个月期间工作限制没有总体显著变化。定性数据突出显示与工作相关的关键问题是工作功能的变化、雇主和同事的态度、经济压力以及情绪反应。

结论

虽然相当一部分人因治疗相关问题离职,且大多数参与者未经历工作场所限制,但一些人报告了相当大的与工作相关的挑战。

对实践的启示

与健康专业人员讨论治疗不良反应对就业的可能影响、与雇主进行良好沟通以及工作场所灵活性可能有助于这一人群重返工作岗位。

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