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“现实生活中并不存在这种污名化现象”:通过让痴呆症患者参与的方式挑战公众对痴呆症的认知(创新实践)

'The stigma attached isn't true of real life': Challenging public perception of dementia through a participatory approach involving people with dementia (Innovative Practice).

作者信息

Reynolds Laura, Innes Anthea, Poyner Christopher, Hambidge Sarah

机构信息

School of Health, Nursing and Midwifery, University of the West of Scotland, UK.

School of Health, Nursing and Midwifery, Institute for Healthcare Policy and Practice, University of the West of Scotland, UK.

出版信息

Dementia (London). 2017 Feb;16(2):219-225. doi: 10.1177/1471301216635828. Epub 2016 Jul 26.

Abstract

This paper discusses the potential impact of viewing public performances of an orchestra comprising people with dementia, family members, student volunteers and professional symphony orchestra members in contributing to challenging negative perceptions of dementia. Negative perceptions of dementia abound despite recent policy attempts to challenge the stigma associated with the condition. This paper reports on the findings from the performance element of a music project for people with dementia, known as the BUDI Orchestra, designed to replicate the traditional rehearse and perform cycle of musicians. Data were collected via self-completion questionnaires from audience members ( N = 109) at three public performances. The performances exceeded the expectations of the general public, and findings suggest a positive impact on perceptions of dementia, demonstrating the power and potential of participatory approaches showcasing the achievements of those living with dementia when attempting to raise awareness of dementia and challenge negative perceptions.

摘要

本文探讨了观看由痴呆症患者、家庭成员、学生志愿者和专业交响乐团成员组成的管弦乐队的公开演出,对于挑战对痴呆症的负面认知可能产生的影响。尽管最近有政策试图挑战与该病症相关的污名,但对痴呆症的负面认知仍然普遍存在。本文报告了一个针对痴呆症患者的音乐项目(即布迪管弦乐团)演出部分的研究结果,该项目旨在重现音乐家传统的排练和演出周期。通过在三场公开演出中向观众(N = 109)发放自填式问卷收集数据。演出超出了公众的预期,研究结果表明对痴呆症的认知产生了积极影响,展示了参与式方法在提高对痴呆症的认识和挑战负面认知时,展现痴呆症患者成就的力量和潜力。

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