Davis Faith, Nagamuthu Chenthila, Ross Jordan, Megyesi Joseph
J Registry Manag. 2015 Winter;42(4):139-45.
The Brain Tumor Foundation of Canada has identified developing a pan-Canadian report on all primary brain tumors as a priority. The objective of this report is to present the history and rationale underlying reporting of brain tumors and to summarize the current status of brain tumor data collection and reporting in Canadian registries. We reviewed the literature on reporting history and rationale, conducted a survey of cancer registries across Canada, and reviewed cancer registry websites and Canadian Cancer Statistics Reports for publicly available descriptive statistics. A brain tumor surveillance system that includes data on both malignant and benign brain tumors is feasible within Canada and will include approximately twice the number of malignant cases currently reported. Once patterns of brain tumors become available, clinicians, researchers, and policy makers will have a clearer understanding of disease burden and how Canadian survival outcomes fare across regions and against other nations. Collaborative efforts on the part of cancer registry and neurooncology stakeholders will serve to enhance the quality and utility of this information for improving the overall patient experience.
加拿大脑肿瘤基金会已将编写一份关于所有原发性脑肿瘤的全加拿大报告确定为优先事项。本报告的目的是介绍脑肿瘤报告的历史和基本原理，并总结加拿大各登记处脑肿瘤数据收集和报告的现状。我们查阅了关于报告历史和基本原理的文献，对加拿大各地的癌症登记处进行了调查，并查阅了癌症登记处网站和《加拿大癌症统计报告》以获取公开的描述性统计数据。在加拿大建立一个包括恶性和良性脑肿瘤数据的脑肿瘤监测系统是可行的，该系统所涵盖的恶性病例数量将约为目前报告数量的两倍。一旦脑肿瘤模式可用，临床医生、研究人员和政策制定者将能更清楚地了解疾病负担，以及加拿大各地区的生存结果与其他国家相比情况如何。癌症登记处和神经肿瘤学利益相关者的合作努力将有助于提高这些信息的质量和实用性，以改善患者的整体体验。
