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医疗保健提供者对晚期癌症和充血性心力衰竭患者预先护理计划的看法。

Perspectives of Health-Care Providers Toward Advance Care Planning in Patients With Advanced Cancer and Congestive Heart Failure.

作者信息

Chandar Manisha, Brockstein Bruce, Zunamon Alan, Silverman Irwin, Dlouhy Sarah, Ashlevitz Kathryn, Tabachow Cory, Lapin Brittany, Ewigman Bernard, Mazzone Theodore, Obel Jennifer

机构信息

1 NorthShore University HealthSystem, Evanston, IL, USA.

出版信息

Am J Hosp Palliat Care. 2017 Jun;34(5):423-429. doi: 10.1177/1049909116636614. Epub 2016 Mar 2.

Abstract

BACKGROUND

Advance care planning (ACP) discussions afford patients and physicians a chance to better understand patients' values and wishes regarding end-of-life care; however, these conversations typically take place late in the course of a disease. The goal of this study was to clarify attitudes of oncologists, cardiologists, and primary care physicians (PCPs) toward ACP and to identify persistent barriers to timely ACP discussion following a quality improvement initiative at our health system geared at improvement in ACP implementation.

METHODS

A 20-question, cross-sectional online survey was created and distributed to cardiologists, oncologists, PCPs, and cardiology and oncology support staff at the NorthShore University HealthSystem (NorthShore) from February to March 2015. A total of 117 individuals (46% of distributed) completed the surveys. The results were compiled using an online survey analysis tool (SurveyMonkey, Inc., Palo Alto, California, USA).

RESULTS

Only 15% of cardiologists felt it was their responsibility to conduct ACP discussions with their patients having congestive heart failure (CHF). In contrast, 68% of oncologists accepted this discussion as their responsibility in patients with terminal cancer ( P < .01). These views were mirrored by PCPs, as 68% of PCPs felt personally responsible for ACP discussion with patients having CHF, while only 34% felt the same about patients with cancer. Reported documentation of these discussions in the electronic health record was inconsistent between specialties. Among all surveyed specialties, lack of time was the major barrier limiting ACP discussion. Perceived patient discomfort and discomfort of the patient's family toward these discussions were also significant reported barriers.

CONCLUSION

Attitudes toward ACP implementation vary considerably by medical specialty and medical condition, with oncologists in this study tending to feel more personal responsibility for these discussions with patients having cancer than cardiologists with their patients having heart failure. Robust implementation of ACP across the spectrum of medical diagnoses is likely to require a true collaboration between office-based PCPs and specialists in both the inpatient and the ambulatory settings.

摘要

背景

预先护理计划(ACP)讨论使患者和医生有机会更好地了解患者关于临终护理的价值观和愿望;然而,这些对话通常在疾病病程后期进行。本研究的目的是阐明肿瘤学家、心脏病学家和初级保健医生(PCP)对ACP的态度,并在我们的医疗系统实施旨在改善ACP实施的质量改进计划后,确定及时进行ACP讨论的持续障碍。

方法

2015年2月至3月,创建了一份包含20个问题的横断面在线调查问卷,并分发给北岸大学医疗系统(NorthShore)的心脏病学家、肿瘤学家、初级保健医生以及心脏病学和肿瘤学支持人员。共有117人(占分发量的46%)完成了调查。结果使用在线调查分析工具(美国加利福尼亚州帕洛阿尔托的SurveyMonkey公司)进行汇总。

结果

只有15%的心脏病学家认为与患有充血性心力衰竭(CHF)的患者进行ACP讨论是他们的责任。相比之下,68%的肿瘤学家接受与晚期癌症患者进行此类讨论是他们的责任(P < 0.01)。初级保健医生也有类似观点,68%的初级保健医生认为自己有责任与患有CHF的患者进行ACP讨论,而只有34%的人对癌症患者有同样的看法。各专业在电子健康记录中对这些讨论的记录不一致。在所有接受调查的专业中,时间不足是限制ACP讨论的主要障碍。患者的不适感以及患者家属对这些讨论的不适感也是报告的重要障碍。

结论

不同医学专业和医疗状况对ACP实施的态度差异很大,在本研究中,与患有癌症的患者进行这些讨论时,肿瘤学家比患有心力衰竭的患者的心脏病学家更倾向于承担个人责任。在各种医疗诊断中有力地实施ACP可能需要门诊初级保健医生与住院和门诊环境中的专科医生之间真正的合作。

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