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Conditions potentially sensitive to a personal health record (PHR) intervention, a systematic review.对个人健康记录(PHR)干预潜在敏感的状况:一项系统综述
BMC Med Inform Decis Mak. 2015 Apr 18;15:32. doi: 10.1186/s12911-015-0159-1.
2
A qualitative study of how patients with type 2 diabetes use an electronic stand-alone personal health record.一项关于2型糖尿病患者如何使用独立电子个人健康记录的定性研究。
Telemed J E Health. 2015 Apr;21(4):296-300. doi: 10.1089/tmj.2014.0084. Epub 2015 Jan 23.
3
Internet delivered diabetes self-management education: a review.互联网糖尿病自我管理教育:综述。
Diabetes Technol Ther. 2015 Jan;17(1):55-63. doi: 10.1089/dia.2014.0155.
4
A systematic review of electronic portal usage among patients with diabetes.糖尿病患者电子门户使用情况的系统评价。
Diabetes Technol Ther. 2014 Nov;16(11):784-93. doi: 10.1089/dia.2014.0078. Epub 2014 Jul 7.
5
Differences Between Patients With Type 2 Diabetes Mellitus Interested and Uninterested in the Use of a Patient Platform (e-VitaDM-2/ZODIAC-41).对使用患者平台(e-VitaDM-2/ZODIAC-41)感兴趣和不感兴趣的2型糖尿病患者之间的差异
J Diabetes Sci Technol. 2014 Mar;8(2):230-237. doi: 10.1177/1932296814524496. Epub 2014 Feb 21.
6
Design of the e-Vita diabetes mellitus study: effects and use of an interactive online care platform in patients with type 2 diabetes (e-VitaDM-1/ZODIAC-40).e-Vita 糖尿病研究设计:在 2 型糖尿病患者中使用交互式在线护理平台的效果(e-VitaDM-1/ZODIAC-40)。
BMC Endocr Disord. 2014 Mar 4;14:22. doi: 10.1186/1472-6823-14-22.
7
Web-based self-management with and without coaching for type 2 diabetes patients in primary care: design of a randomized controlled trial.基于网络的自我管理联合或不联合指导用于初级保健 2 型糖尿病患者:一项随机对照试验的设计。
BMC Endocr Disord. 2013 Nov 16;13:53. doi: 10.1186/1472-6823-13-53.
8
Computer-based diabetes self-management interventions for adults with type 2 diabetes mellitus.针对2型糖尿病成年患者的基于计算机的糖尿病自我管理干预措施。
Cochrane Database Syst Rev. 2013 Mar 28;2013(3):CD008776. doi: 10.1002/14651858.CD008776.pub2.
9
Psychometric and screening properties of the WHO-5 well-being index in adult outpatients with Type 1 or Type 2 diabetes mellitus.1 型或 2 型糖尿病成年门诊患者 WHO-5 幸福指数的心理计量学和筛查特性。
Diabet Med. 2013 Feb;30(2):e63-9. doi: 10.1111/dme.12040.
10
Group based diabetes self-management education compared to routine treatment for people with type 2 diabetes mellitus. A systematic review with meta-analysis.基于群组的糖尿病自我管理教育与常规治疗相比用于 2 型糖尿病患者。系统评价与荟萃分析。
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针对在初级保健机构接受治疗的2型糖尿病患者,配备自我管理支持与指导的e-Vita个人健康记录的应用及效果

Uptake and Effects of the e-Vita Personal Health Record with Self-Management Support and Coaching, for Type 2 Diabetes Patients Treated in Primary Care.

作者信息

van Vugt M, de Wit M, Sieverink F, Roelofsen Y, Hendriks S H, Bilo H J G, Snoek F J

机构信息

Department of Medical Psychology, VU University Medical Center, 1081 HZ Amsterdam, Netherlands; EMGO Institute for Health and Care Research, VU University Medical Center, 1081 HZ Amsterdam, Netherlands.

Centre for eHealth and Wellbeing Research, University of Twente, 7522 NB Enschede, Netherlands.

出版信息

J Diabetes Res. 2016;2016:5027356. doi: 10.1155/2016/5027356. Epub 2016 Feb 3.

DOI:10.1155/2016/5027356
PMID:26955640
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4756133/
Abstract

We studied the use, uptake, and effects of e-Vita, a personal health record, with self-management support and personalized asynchronized coaching, for type 2 diabetes patients treated in primary care. Patients were invited by their practice nurse to join the study aimed at testing use and effects of a personal health record. Patients were followed up for 6 months. Uptake and usage were monitored using log data. Outcomes were self-reported diabetes self-care, diabetes-related distress, and emotional wellbeing. Patients' health status was collected from their medical chart. 132 patients agreed to participate in the study of which less than half (46.1%) did not return to the personal health record after 1st login. Only 5 patients used the self-management support program within the personal health record, 3 of whom asked a coach for feedback. Low use of the personal health record was registered. No statistical significant differences on any of the outcome measures were found between baseline and 6 month follow-up. This study showed minimal impact of implementing a personal health record including self-management support in primary diabetes care. Successful adoption of web-based platforms, as ongoing patient centered care, is hard to achieve without additional strategies aimed at enhancing patient motivation and engaging professionals.

摘要

我们研究了电子健康记录e-Vita在初级护理中对2型糖尿病患者的使用情况、接受程度及其效果,该记录具备自我管理支持和个性化异步指导功能。患者由其执业护士邀请加入旨在测试个人健康记录的使用情况及效果的研究。对患者进行了6个月的随访。使用日志数据监测接受程度和使用情况。结果包括自我报告的糖尿病自我护理、糖尿病相关困扰和情绪健康状况。患者的健康状况从其病历中收集。132名患者同意参与研究,其中不到一半(46.1%)在首次登录后未再使用个人健康记录。只有5名患者使用了个人健康记录中的自我管理支持计划,其中3人向指导人员寻求反馈。个人健康记录的使用情况较低。在基线和6个月随访之间,在任何结果指标上均未发现统计学上的显著差异。本研究表明,在初级糖尿病护理中实施包括自我管理支持在内的个人健康记录影响甚微。如果没有旨在提高患者积极性和促使专业人员参与的额外策略,作为持续的以患者为中心的护理方式,成功采用基于网络的平台是很难实现的。