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非洲的自闭症谱系障碍:识别、评估和治疗中的当前挑战:关于2014年4月3日至5日在加纳举行的国际儿童神经学协会非洲自闭症谱系障碍会议的报告

Autism Spectrum Disorders in Africa: Current Challenges in Identification, Assessment, and Treatment: A Report on the International Child Neurology Association Meeting on ASD in Africa, Ghana, April 3-5, 2014.

作者信息

Ruparelia Kavita, Abubakar Amina, Badoe Eben, Bakare Muideen, Visser Karren, Chugani Diane C, Chugani Harry T, Donald Kirsten A, Wilmshurst Jo M, Shih Andy, Skuse David, Newton Charles R

机构信息

Open University, Milton Keynes, United Kingdom and Department of Pediatrics and Child Health, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania.

KEMRI-Wellcome Trust Research Program, Centre for Geographic Medicine Research (Coast), Nairobi, Kenya Department of Culture Studies, Tilburg University, Tilburg, Netherlands Department of Psychology, Lancaster University, Lancaster, UK.

出版信息

J Child Neurol. 2016 Jul;31(8):1018-26. doi: 10.1177/0883073816635748. Epub 2016 Mar 15.

Abstract

Prevalence of autism spectrum disorders has increased over recent years, however, little is known about the identification and management of autism spectrum disorder in Africa. This report summarizes a workshop on autism spectrum disorder in Africa under the auspices of the International Child Neurology Association and the African Child Neurology Association through guided presentations and working group reports, focusing on identification, diagnosis, management, and community support. A total of 47 delegates participated from 14 African countries. Although there was a huge variability in services across the countries represented, numbers of specialists assessing and managing autism spectrum disorder was small relative to populations served. Strategies were proposed to improve identification, diagnosis, management and support delivery for individuals with autism spectrum disorder across Africa in these culturally diverse, low-resource settings. Emphasis on raising public awareness through community engagement and improving access to information and training in autism spectrum disorder. Special considerations for the cultural, linguistic, and socioeconomic factors within Africa are discussed.

摘要

近年来,自闭症谱系障碍的患病率有所上升,然而,关于非洲自闭症谱系障碍的识别与管理却知之甚少。本报告总结了在国际儿童神经学协会和非洲儿童神经学协会主持下举办的一场关于非洲自闭症谱系障碍的研讨会,通过引导性演讲和工作组报告,重点关注识别、诊断、管理及社区支持。共有来自14个非洲国家的47名代表参会。尽管参会各国的服务存在巨大差异,但相对于所服务的人口而言,评估和管理自闭症谱系障碍的专家数量较少。针对在这些文化多元、资源匮乏的环境中改善非洲自闭症谱系障碍患者的识别、诊断、管理及支持服务,提出了相关策略。强调通过社区参与提高公众意识,并改善获取自闭症谱系障碍信息及培训的机会。文中还讨论了非洲文化、语言和社会经济因素的特殊考量。

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