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抑制自闭症儿童社会参与的因素:海岸角都会区家长的观点

Factors that inhibit the social involvement of children with autism: perspectives of parents in the Cape Coast metropolis.

作者信息

Akpeke Mawulorm, Agbemavi Wonder, Adde Kenneth Setorwu

机构信息

Department of Population and Health, University of Cape Coast, Cape Coast, Ghana.

School of Demography, Australian National University, Canberra, Australia.

出版信息

BMC Pediatr. 2024 Dec 19;24(1):825. doi: 10.1186/s12887-024-05322-9.

Abstract

BACKGROUND

Many countries, including Ghana, continue to face challenges concerning the social involvement of persons with disabilities such as autism. This study investigated the factors that inhibit the social involvement of children with autism in the Cape Coast Metropolis.

METHODS

The study was conducted in the Cape Coast metropolis. A qualitative interpretivism approach was used. Twenty-three participants were recruited for the study using purposive sampling. An in-depth interview guide was employed for data collection, and thematic analysis was used.

RESULTS

We found that most autistic children do not get the opportunity to be involved in social activities due to their autistic features, socio-cultural and their parents' financial status. The findings also showed that the inability of children with autism to speak fluently and sit for long without being aggressive prevents their inclusion in social activities. However, older children with autism were considered more for activities in the metropolis than those within the younger ages. Financial constraint was a common challenge that prevented some parents from bringing up their children with autism in ways that would make them considerable for social roles.

CONCLUSION

Factors such as autistic features, sociocultural and financial constraints inhibited the social involvement of children with autism. Underlining these barriers is the issue of inadequate knowledge of autism and financial barriers for parents of children with autism. We, therefore, recommended that the Ghana Health Service and the Ministry of Health to intensify advocacy programs targeted at educating the public on autism to reduce discrimination.

摘要

背景

包括加纳在内的许多国家,在自闭症等残疾人的社会融入方面仍面临挑战。本研究调查了在海岸角都会区阻碍自闭症儿童社会融入的因素。

方法

该研究在海岸角都会区进行。采用定性解释主义方法。使用目的抽样法招募了23名参与者进行研究。采用深入访谈指南收集数据,并进行主题分析。

结果

我们发现,大多数自闭症儿童由于其自闭症特征、社会文化因素及其父母的经济状况,没有机会参与社会活动。研究结果还表明,自闭症儿童无法流利说话且不能长时间安静坐着而不具有攻击性,这阻碍了他们融入社会活动。然而,在都会区,年龄较大的自闭症儿童比年龄较小的儿童有更多机会参与活动。经济限制是一个常见的挑战,使一些父母无法以让孩子能够参与社会角色的方式抚养自闭症子女。

结论

自闭症特征、社会文化和经济限制等因素阻碍了自闭症儿童的社会融入。这些障碍的背后是对自闭症的认识不足以及自闭症儿童父母面临的经济障碍问题。因此,我们建议加纳卫生服务局和卫生部加强宣传项目,旨在向公众普及自闭症知识,以减少歧视。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2f02/11657964/e32cb253aba5/12887_2024_5322_Fig1_HTML.jpg

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