Mansfield Elise, Bryant Jamie, Regan Timothy, Waller Amy, Boyes Allison, Sanson-Fisher Rob
a Health Behaviour Research Group, Priority Research Centre for Health Behaviour , University of Newcastle & Hunter Medical Research Institute, HMRI Building, University of Newcastle , Callaghan , New South Wales , Australia.
COPD. 2016 Oct;13(5):662-7. doi: 10.3109/15412555.2016.1151488. Epub 2016 Mar 15.
Caregivers of individuals with chronic obstructive pulmonary disease (COPD) experience significant burden. To develop effective interventions to support this vulnerable group, it is necessary to understand how this burden varies as a function of patient well-being and across the illness trajectory. This systematic review aimed to identify the number and type of data-based publications exploring the burden and unmet needs of caregivers of individuals with COPD. Medline, Embase, PsycINFO and Cochrane databases were searched for studies published between January 2000 and February 2014. Studies were eligible if they were quantitative studies examining unmet needs of, or burden on, adult caregivers of individuals with COPD. Eligible papers were categorised according to (i) type (i.e. descriptive, measurement and intervention studies); (ii) whether they measured associations between patient and caregiver burden and (iii) whether they measured caregiver burden longitudinally. Twenty-seven data-based papers met criteria for inclusion. There was a significant increase in the total number of publications over time. The majority of publications were descriptive studies (n = 25), with one measurement and one intervention study identified. Fourteen descriptive studies measured the relationship between patient or caregiver factors and caregiver burden. Only two studies measured caregiver burden over time. There are a number of gaps in the body of research examining burden and unmet needs of caregivers of individuals with COPD that preclude the development of effective interventions for this population. Greater research effort should be directed towards identifying rigorous measurement tools which more accurately characterise caregiver burden, so that evidence-based interventions can be developed.
慢性阻塞性肺疾病（COPD）患者的照护者承受着巨大的负担。为了制定有效的干预措施来支持这一弱势群体，有必要了解这种负担如何随患者健康状况以及疾病轨迹而变化。本系统评价旨在确定探索COPD患者照护者负担及未满足需求的基于数据的出版物的数量和类型。检索了Medline、Embase、PsycINFO和Cochrane数据库，查找2000年1月至2014年2月发表的研究。如果研究是定量研究，考察COPD患者成年照护者的未满足需求或负担，则符合纳入条件。符合条件的论文根据以下方面进行分类：（i）类型（即描述性、测量性和干预性研究）；（ii）是否测量了患者与照护者负担之间的关联；（iii）是否纵向测量了照护者负担。27篇基于数据的数据符合纳入标准。随着时间推移，出版物总数显著增加。大多数出版物为描述性研究（n = 25），仅识别出1篇测量性研究和1篇干预性研究。14篇描述性研究测量了患者或照护者因素与照护者负担之间的关系。只有2项研究纵向测量了照护者负担。在研究COPD患者照护者负担及未满足需求的研究主体中，存在一些差距，这妨碍了针对该人群制定有效的干预措施。应加大研究力度，以确定更准确描述照护者负担的严格测量工具，从而能够制定基于证据的干预措施。
