Bharmal Nazleen, Lucas-Wright Anna Aziza, Vassar Stefanie D, Jones Felica, Jones Loretta, Wells Rebekah, Cienega Jason, Brown Arleen F
Prog Community Health Partnersh. 2016 Spring;10(1):149-58. doi: 10.1353/cpr.2016.0010.
Racial/ethnic minorities have a higher burden of stroke, but lower awareness and understanding of stroke and its risk factors. Our community-academic collaborative hosted a symposium in South Los Angeles to increase awareness about stroke, provide information on the Los Angeles Stroke Intervention and Research Program (SPIRP), and facilitate bidirectional communication between researchers and community stakeholders.
We discuss our partnered approach to increase stroke awareness, elicit community perspectives and perceptions about stroke prevention and research participation, and increase community involvement in research using a community engagement symposium (CES).
We used a community-partnered participatory research (CPPR) conference framework to guide symposium planning, implementation and analysis. The morning session included clinical lectures, a panel of researchers describing LA SPIRP, and a panel presentation by stroke caregivers and survivors. In afternoon breakout sessions, attendees identified 1) community-based strategies to prevent stroke and 2) methods to increase recruitment of diverse populations in stroke research studies. Attendees were surveyed about stroke knowledge before and after the morning session. Data from breakout sessions were analyzed using content analysis and pile sorting to identify themes.
We found that the CES based on CPPR principles was effective method to increase short-term stroke awareness and stimulate discussion about stroke research among community members and community stakeholders who serve racial/ethnic minorities.
种族/族裔少数群体的中风负担较重,但对中风及其危险因素的认识和了解较低。我们的社区-学术合作团队在南洛杉矶举办了一次研讨会,以提高对中风的认识,提供有关洛杉矶中风干预与研究项目(SPIRP)的信息,并促进研究人员与社区利益相关者之间的双向沟通。
我们讨论了通过社区参与研讨会(CES)来提高中风认识、了解社区对中风预防和研究参与的观点与看法,并增加社区对研究的参与度的合作方法。
我们使用社区合作参与式研究(CPPR)会议框架来指导研讨会的规划、实施和分析。上午的会议包括临床讲座、一组描述洛杉矶SPIRP的研究人员以及中风护理人员和幸存者的小组报告。在下午的分组讨论中,与会者确定了1)基于社区的中风预防策略,以及2)增加中风研究中不同人群招募的方法。在上午会议前后对与会者进行了中风知识调查。使用内容分析和聚类排序对分组讨论的数据进行分析以确定主题。
我们发现,基于CPPR原则的CES是提高短期中风认识并激发社区成员和为种族/族裔少数群体服务的社区利益相关者之间关于中风研究讨论的有效方法。