“教会人们我不仅仅是一种残疾”：在以患者为中心的智力和发育障碍人群研究中使用名义群体技术。

"Teaches People That I'm More Than a Disability": Using Nominal Group Technique in Patient-Oriented Research for People With Intellectual and Developmental Disabilities.

机构信息

Natasha A. Spassiani, Department of Psychiatry, University of Toronto, Centre for Addiction and Mental Health (CAMH), Toronto, Canada;

Amanda R. Sawyer, Megan S. Abou Chacra, Kimberley Koch, Yasmin A. Muñoz, and Yona Lunsky, Centre for Addiction and Mental Health, University of Toronto, Toronto, Canada.

出版信息

Intellect Dev Disabil. 2016 Apr;54(2):112-22. doi: 10.1352/1934-9556-54.2.112.

DOI:10.1352/1934-9556-54.2.112

PMID:27028253

Abstract

Individuals with intellectual and developmental disabilities (IDD) have complex healthcare needs, which are often unmet. Nominal group technique (NGT) uses a mixed-methods approach, which may engage the IDD population in the research process in a person-centered manner and address the shortcomings of traditional research methods with this population. NGT was used with a group of 10 self-advocates to evaluate a series of healthcare tools created by and for individuals with IDD. Participants provided helpful input about the strengths of these tools and suggestions to improve them. NGT was found to be an effective way to engage all participants in the research process.

摘要

具有智力和发育障碍 (IDD) 的个体有复杂的医疗保健需求，但往往得不到满足。名义群体技术 (NGT) 使用混合方法，以以人为本的方式让 IDD 群体参与研究过程，并解决针对这一群体的传统研究方法的缺点。NGT 用于对由 IDD 个体创建的一系列医疗保健工具进行评估，有 10 名自我倡导者参与了小组讨论。参与者提供了这些工具的优势的有用意见，并提出了改进建议。研究发现，NGT 是一种让所有参与者都有效参与研究过程的方法。