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撤除维持生命治疗后临终过程中的家庭经历。

Family Experiences During the Dying Process After Withdrawal of Life-Sustaining Therapy.

作者信息

Wiegand Debra L

机构信息

Debra L. Wiegand, RN, PhD, is an associate professor at the University of Maryland School of Nursing.

出版信息

Dimens Crit Care Nurs. 2016 May-Jun;35(3):160-6. doi: 10.1097/DCC.0000000000000174.

DOI:10.1097/DCC.0000000000000174
PMID:27043402
Abstract

BACKGROUND

Life-sustaining therapy is commonly withdrawn in intensive care units, yet little is known about the perceptions of families when a critically ill patient dies after life-sustaining therapy is withdrawn.

AIM

The purpose of this investigation was to understand the experience of families when a family member had an unexpected life-threatening illness or injury and who died after life-sustaining therapy was withdrawn.

METHODS

This investigation used a hermeneutic phenomenological approach. Interviews were conducted with family members after the patient's death. All interviews were transcribed with units of meaning and clusters, and then categories inductively determined. Methodological rigor was established.

SETTING/PARTICIPANTS: A purposive sample of family members was recruited into the study from 3 intensive care units. Twenty-two family members participated in the study.

RESULTS

Six categories evolved from the analysis: preparing for the dying process, the dying environment, perceptions of patient comfort, the death vigil, essential aspects of care, and together as a family. Families described the death vigil as extremely difficult. Family members described several aspects of care as very meaningful to them during the dying process. Families described how important it was for the family to be together as a family during the dying process.

摘要

背景

在重症监护病房,维持生命的治疗常常被撤除,然而,对于撤除维持生命的治疗后重症患者死亡时家属的看法却知之甚少。

目的

本调查的目的是了解家庭成员在其亲属遭遇意外的危及生命的疾病或损伤且在撤除维持生命的治疗后死亡时的经历。

方法

本调查采用诠释现象学方法。在患者死亡后对其家属进行访谈。所有访谈均根据意义单元和聚类进行转录,然后归纳确定类别。建立了方法学严谨性。

地点/参与者:从3个重症监护病房中选取了有目的的家属样本纳入研究。22名家属参与了研究。

结果

分析得出六个类别:为死亡过程做准备、死亡环境、对患者舒适度的看法、守灵、护理的重要方面以及家人团聚。家属们表示守灵极其艰难。家属们描述了在死亡过程中护理的几个方面对他们非常有意义。家属们描述了在死亡过程中家人团聚对家庭来说有多重要。

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