University of Maryland School of Nursing, Baltimore, MD 21201, USA.
J Fam Nurs. 2012 Feb;18(1):146-63. doi: 10.1177/1074840711428451. Epub 2012 Jan 5.
Although more is known about how individuals within families make decisions and manage more discrete issues when a family member is dying, less is known about how families as a unit manage after the sudden death of a family member. The article discusses an investigation that was conducted to better understand how families respond to the life-threatening illness or injury and eventual death of a family member. The purpose of the study was to define Family Management Styles (FMSs) and determine distinctive characteristics of each FMS used by families after the death of a family member who had life-sustaining therapy withdrawn as a result of an unexpected, life-threatening illness or injury. Interviews are conducted with 8 families (22 family members) 1 to 2 years after the death of their family members. A modified typology of FMSs based on a directed analysis that was then inductively modified includes: progressing, accommodating, maintaining, struggling, and floundering. Understanding FMSs and how FMSs may change over time, reflecting the changing focus of family work, will further aid in the development of family-focused interventions as well as develop FMSs within the context of end of life.
虽然人们对家庭中的个体在家庭成员去世时如何做出决策和处理更离散的问题了解得更多,但对于家庭作为一个单位在家庭成员突然去世后如何管理的了解却较少。本文讨论了一项旨在更好地理解家庭如何应对危及生命的疾病或伤害以及最终因意外危及生命的疾病或伤害而停止维持生命治疗的家庭成员的死亡的调查。这项研究的目的是定义家庭管理风格(FMS),并确定在家庭成员去世后,每个 FMS 的独特特征,该家庭成员是由于意外的危及生命的疾病或伤害而停止维持生命的治疗。在家庭成员去世 1 至 2 年后,对 8 个家庭(22 名家庭成员)进行了访谈。在进行了定向分析后,对 FMS 进行了修改,并进行了归纳修改,包括:进展型、适应型、维持型、挣扎型和混乱型。了解 FMS 以及 FMS 如何随时间变化,反映家庭工作的重点变化,将进一步有助于制定以家庭为中心的干预措施,并在生命末期的背景下发展 FMS。