Himes Blanca E, Weitzman Elissa R
Department of Biostatistics and Epidemiologyok, University of Pennsylvania, Philadelphia, PA, 19104, USA.
Computational Health Informatics Program, Boston Children's Hospital, Boston, MA, 02115, USA.
Respir Res. 2016 Apr 5;17:38. doi: 10.1186/s12931-016-0354-3.
Asthma and chronic obstructive pulmonary disease (COPD) are common chronic obstructive lung disorders in the US that affect over 49 million people. There is no cure for asthma or COPD, but clinical guidelines exist for controlling symptoms that are successful in most patients that adhere to their treatment plan. Health information technologies (HITs) are revolutionizing healthcare by becoming mainstream tools to assist patients in self-monitoring and decision-making, and subsequently, driving a shift toward a care model increasingly centered on personal adoption and use of digital and web-based tools. While the number of chronic pulmonary disease HITs is rapidly increasing, most have not been validated as clinically effective tools for the management of disease. Online communities for asthma and COPD patients are becoming sources of empowerment and support, as well as facilitators of patient-centered research efforts. In addition to empowering patients and facilitating disease self-management, HITs offer promise to aid researchers in identifying chronic pulmonary disease endotypes and personalized treatments based on patient-specific profiles that integrate symptom occurrence and medication usage with environmental and genomic data.
哮喘和慢性阻塞性肺疾病（COPD）是美国常见的慢性阻塞性肺部疾病，影响着超过4900万人。哮喘或慢性阻塞性肺疾病无法治愈，但存在控制症状的临床指南，大多数坚持治疗方案的患者症状能够得到有效控制。健康信息技术（HIT）正在彻底改变医疗保健方式，成为协助患者进行自我监测和决策的主流工具，进而推动医疗模式逐渐向日益以个人采用和使用数字及网络工具为中心转变。虽然慢性肺病健康信息技术的数量正在迅速增加，但大多数尚未被证实是管理疾病的临床有效工具。哮喘和慢性阻塞性肺疾病患者的在线社区正成为赋权和支持的来源，以及以患者为中心的研究工作的促进者。除了增强患者能力和促进疾病自我管理外，健康信息技术有望帮助研究人员识别慢性肺病的内型，并根据将症状发生、药物使用与环境和基因组数据整合在一起的患者特定档案制定个性化治疗方案。
