Quast Lauren F, Turner Elise M, McCurdy Mark D, Hocking Matthew C
a Division of Oncology, The Children's Hospital of Philadelphia , Philadelphia , PA , USA.
b Department of Psychology , Drexel University , Philadelphia , PA , USA.
J Psychosoc Oncol. 2016 Jul-Aug;34(4):274-90. doi: 10.1080/07347332.2016.1175535.
This study examines theoretical covariates of health-related quality of life (HRQL) in parents of pediatric brain tumor survivors (PBTS) following completion of tumor-directed therapy.
Fifty PBTS (ages 6-16) completed measures of neurocognitive functioning and their parents completed measures of family, survivor, and parent functioning.
Caregiving demand, caregiver competence, and coping/supportive factors were associated with parental physical and psychosocial HRQL, when controlling for significant background and child characteristics.
Study findings can inform interventions to strengthen caregiver competence and family functioning following the completion of treatment, which may improve both parent and survivor outcomes.
本研究考察了小儿脑肿瘤幸存者（PBTS）的父母在肿瘤定向治疗结束后的健康相关生活质量（HRQL）的理论协变量。
50名PBTS（年龄6 - 16岁）完成了神经认知功能测量，其父母完成了家庭、幸存者及父母功能测量。
在控制显著的背景和儿童特征后，照顾需求、照顾者能力以及应对/支持因素与父母的身体和心理社会HRQL相关。
研究结果可为治疗结束后增强照顾者能力和家庭功能的干预措施提供参考，这可能改善父母和幸存者的结局。
