小儿脑肿瘤幸存者父母在肿瘤定向治疗结束时与健康相关的生活质量。
Health-related quality of life in parents of pediatric brain tumor survivors at the end of tumor-directed therapy.
作者信息
Quast Lauren F, Turner Elise M, McCurdy Mark D, Hocking Matthew C
机构信息
a Division of Oncology, The Children's Hospital of Philadelphia , Philadelphia , PA , USA.
b Department of Psychology , Drexel University , Philadelphia , PA , USA.
出版信息
J Psychosoc Oncol. 2016 Jul-Aug;34(4):274-90. doi: 10.1080/07347332.2016.1175535.
Abstract
OBJECTIVE
This study examines theoretical covariates of health-related quality of life (HRQL) in parents of pediatric brain tumor survivors (PBTS) following completion of tumor-directed therapy.
METHODS
Fifty PBTS (ages 6-16) completed measures of neurocognitive functioning and their parents completed measures of family, survivor, and parent functioning.
RESULTS
Caregiving demand, caregiver competence, and coping/supportive factors were associated with parental physical and psychosocial HRQL, when controlling for significant background and child characteristics.
CONCLUSION
Study findings can inform interventions to strengthen caregiver competence and family functioning following the completion of treatment, which may improve both parent and survivor outcomes.
摘要
目的
本研究考察了小儿脑肿瘤幸存者（PBTS）的父母在肿瘤定向治疗结束后的健康相关生活质量（HRQL）的理论协变量。
方法
50名PBTS（年龄6 - 16岁）完成了神经认知功能测量，其父母完成了家庭、幸存者及父母功能测量。
结果
在控制显著的背景和儿童特征后，照顾需求、照顾者能力以及应对/支持因素与父母的身体和心理社会HRQL相关。
结论
研究结果可为治疗结束后增强照顾者能力和家庭功能的干预措施提供参考，这可能改善父母和幸存者的结局。
相似文献
1
Health-related quality of life in parents of pediatric brain tumor survivors at the end of tumor-directed therapy.
J Psychosoc Oncol. 2016 Jul-Aug;34(4):274-90. doi: 10.1080/07347332.2016.1175535.
2
A prospective study of family predictors of health-related quality of life in pediatric brain tumor survivors.
Pediatr Blood Cancer. 2018 Jun;65(6):e26976. doi: 10.1002/pbc.26976. Epub 2018 Jan 19.
3
Family Functioning Mediates the Association Between Neurocognitive Functioning and Health-Related Quality of Life in Young Adult Survivors of Childhood Brain Tumors.
J Adolesc Young Adult Oncol. 2015 Mar;4(1):18-25. doi: 10.1089/jayao.2014.0022.
4
Psychosocial profile of pediatric brain tumor survivors with neurocognitive complaints.
Qual Life Res. 2016 Feb;25(2):435-446. doi: 10.1007/s11136-015-1091-7. Epub 2015 Aug 20.
5
Surviving a brain tumor in childhood: impact on family functioning in adolescence.
Psychooncology. 2015 Jan;24(1):89-94. doi: 10.1002/pon.3599. Epub 2014 Jul 12.
6
Quality of Life in Survivors of Pediatric Cancer and Their Siblings: The Consensus Between Parent-Proxy and Self-Reports.
Pediatr Blood Cancer. 2016 Apr;63(4):677-83. doi: 10.1002/pbc.25868. Epub 2016 Jan 6.
7
Psychosocial functioning of caregivers of pediatric brain tumor survivors.
Pediatr Blood Cancer. 2022 Apr;69(4):e29565. doi: 10.1002/pbc.29565. Epub 2022 Jan 19.
8
Development of a Web-Based Psychosocial Intervention for Adolescent and Young Adult Survivors of Pediatric Brain Tumor.
J Adolesc Young Adult Oncol. 2018 Apr;7(2):187-195. doi: 10.1089/jayao.2017.0084. Epub 2017 Dec 6.
9
"She Was a Little Social Butterfly": A Qualitative Analysis of Parent Perception of Social Functioning in Adolescent and Young Adult Brain Tumor Survivors.
J Pediatr Oncol Nurs. 2017 Jul/Aug;34(4):239-249. doi: 10.1177/1043454216688660. Epub 2017 Feb 1.
10
Caregiver distress and patient health-related quality of life: psychosocial screening during pediatric cancer treatment.
Psychooncology. 2017 Oct;26(10):1555-1561. doi: 10.1002/pon.4171. Epub 2016 Jun 20.
引用本文的文献
1
Mothers participation in caring for hospitalized children with acute gastroenteritis: A quasi-experimental study.
Nurs Open. 2023 Sep;10(9):6398-6407. doi: 10.1002/nop2.1889. Epub 2023 Jun 15.
2
The Association of Resilience with Way of Coping, Psychological Well-Being and Quality of Life in Parents of Children with Cancer.
Int J Environ Res Public Health. 2023 May 9;20(10):5765. doi: 10.3390/ijerph20105765.
3
Usefulness of the SF-36 Health Survey questionnaire in screening for health-related quality of life among parents of children with cancer: Latent profile analysis.
J Prev Med Hyg. 2022 Apr 26;63(1):E142-E151. doi: 10.15167/2421-4248/jpmh2022.63.1.2279. eCollection 2022 Mar.
4
Psychosocial functioning of caregivers of pediatric brain tumor survivors.
Pediatr Blood Cancer. 2022 Apr;69(4):e29565. doi: 10.1002/pbc.29565. Epub 2022 Jan 19.
5
Tracing the Use of the Family Management Framework and Measure: A Scoping Review.
J Fam Nurs. 2021 May;27(2):87-106. doi: 10.1177/1074840721994331. Epub 2021 Mar 20.
6
Quality of Life Among Parents of Adolescent and Young Adult Brain Tumor Survivors.
J Pediatr Hematol Oncol. 2017 Nov;39(8):579-584. doi: 10.1097/MPH.0000000000000947.
本文引用的文献
1
Standards of Psychosocial Care for Parents of Children With Cancer.
Pediatr Blood Cancer. 2015 Dec;62 Suppl 5(Suppl 5):S632-83. doi: 10.1002/pbc.25761.
2
Assessment of Financial Burden as a Standard of Care in Pediatric Oncology.
Pediatr Blood Cancer. 2015 Dec;62 Suppl 5:S619-31. doi: 10.1002/pbc.25714.
3
Mothers and fathers coping with their children's cancer: Individual and interpersonal processes.
Health Psychol. 2015 Aug;34(8):783-93. doi: 10.1037/hea0000202. Epub 2015 Jan 26.
4
Health-related quality of life of adolescent and young adult survivors of childhood brain tumors.
Psychooncology. 2015 Jul;24(7):804-11. doi: 10.1002/pon.3649. Epub 2014 Aug 11.
5
Resilience and psychosocial outcomes in parents of children with cancer.
Pediatr Blood Cancer. 2014 Mar;61(3):552-7. doi: 10.1002/pbc.24854. Epub 2013 Nov 19.
6
Competence in caregivers of adolescent and young adult childhood brain tumor survivors.
Health Psychol. 2014 Oct;33(10):1103-12. doi: 10.1037/a0033756. Epub 2013 Aug 19.
7
A comparison study of depression and quality of life in Turkish mothers of children with Down syndrome, cerebral palsy, and autism spectrum disorder.
Psychol Rep. 2013 Feb;112(1):266-87. doi: 10.2466/21.02.15.PR0.112.1.266-287.
8
The impact of children with disabilities on parent health-related quality of life and family functioning in Kelantan and its associated factors.
J Dev Behav Pediatr. 2013 May;34(4):262-8. doi: 10.1097/DBP.0b013e318287cdfe.
9
Quality of life and mental health among parents of children with cerebral palsy: the influence of self-efficacy and coping strategies.
J Clin Nurs. 2013 Jun;22(11-12):1579-90. doi: 10.1111/jocn.12124. Epub 2013 Mar 6.
10
Neurocognitive late effects of pediatric brain tumors of the posterior fossa: a quantitative review.
J Int Neuropsychol Soc. 2013 Jan;19(1):44-53. doi: 10.1017/S1355617712000987. Epub 2012 Oct 25.
Zotero 插件