皮肤科患者登记研究综述。
Review of patient registries in dermatology.
机构信息
Center for Dermatology Research, Department of Dermatology, Wake Forest School of Medicine, Winston-Salem, North Carolina.
Center for Dermatology Research, Department of Dermatology, Wake Forest School of Medicine, Winston-Salem, North Carolina; Department of Pathology, Wake Forest School of Medicine, Winston-Salem, North Carolina; Department of Public Health Sciences, Wake Forest School of Medicine, Winston-Salem, North Carolina.
出版信息
J Am Acad Dermatol. 2016 Oct;75(4):824-829. doi: 10.1016/j.jaad.2016.03.020. Epub 2016 Apr 16.
BACKGROUND
Patient registries are datasets containing information on patients with a particular disease or patients who are undergoing a specific treatment.
OBJECTIVE
Our objective was to search for and catalog the types of registries being used in dermatology and investigate their characteristics and uses.
METHODS
We searched Google, the Registry of Patient Registries, Orphanet, and ClinicalTrials.gov to compile a list of dermatology disease registries. We also conducted a literature review on the uses of dermatology registries using PubMed.
RESULTS
We identified 48 dermatology patient registries, with 23 distinct diseases represented. We also identified 11 registries used for postmarketing surveillance of skin disease.
LIMITATIONS
Our search was limited to registries in English.
CONCLUSIONS
Registries are commonly used for the study of rare dermatologic diseases and for postsurveillance monitoring of systemic therapies in more common dermatologic diseases, such as psoriasis.
背景
患者登记处是包含特定疾病患者或接受特定治疗的患者信息的数据集。
目的
我们的目的是搜索和分类皮肤科中使用的登记处类型，并调查它们的特征和用途。
方法
我们在 Google、患者登记处注册表、Orphanet 和 ClinicalTrials.gov 上进行了搜索，以编制皮肤科疾病登记处的清单。我们还使用 PubMed 对皮肤科登记处的用途进行了文献综述。
结果
我们确定了 48 个皮肤科患者登记处，涉及 23 种不同的疾病。我们还确定了 11 个用于皮肤病上市后监测的登记处。
局限性
我们的搜索仅限于英文登记处。
结论
登记处通常用于研究罕见的皮肤科疾病，以及更常见的皮肤科疾病（如银屑病）的系统治疗后监测。
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