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痴呆症患者的自主性与尊严:多元文化护理者的认知

Autonomy and dignity of patients with dementia: Perceptions of multicultural caretakers.

作者信息

Bentwich Miriam Ethel, Dickman Nomy, Oberman Amitai

机构信息

Bar-Ilan University, Israel.

The Baruch Padeh Medical Center, Poriya and Bar-Ilan University, Israel.

出版信息

Nurs Ethics. 2018 Feb;25(1):37-53. doi: 10.1177/0969733016642625. Epub 2016 Apr 24.

DOI:10.1177/0969733016642625
PMID:27113259
Abstract

BACKGROUND

A key message in the World Health Organization's report on dementia emphasizes the need to improve public and professional attitudes to dementia and its understanding, while acknowledging the fact that the workforce in dementia care is becoming increasingly diverse culturally.

OBJECTIVES

To explore possible differences among formal caretakers from varied cultural background in their attitudes toward the autonomy and human dignity of patients with dementia.

RESEARCH DESIGN

Semi-structured interviews and content analysis, utilizing two fictional vignettes for eliciting caretakers' attitudes toward dignity and autonomy of their patients. Participants and context: A total of 20 formal caretakers of patients with dementia from three different cultural groups in Israel ("Sabras," "Arabs," and "Russians"), working in nursing homes and a hospital. Ethical consideration: Approvals of relevant research ethics committees were obtained and followed.

FINDINGS

In comparison with the other groups, most Arab caretakers offer markedly richer perceptions of human dignity and autonomy. Their human dignity's conceptualization emphasizes "person-centered approach," and their perception of patients' autonomy includes provision of explanations and preservation and encouragement of independence.

DISCUSSION

The differences found in the attitudes toward the meaning of autonomy and human dignity between the Arab caretakers and the other caretakers stand in contrast to previous studies regarding human dignity, emphasizing the common nature of these attitudes. Offering a linkage (theoretical and empirical) between the Arab perceptions of dignity and autonomy, the study strengthen and further the importance attributed in existing literature to person-centered care in enhancing the quality of care for patients with dementia.

CONCLUSION

The conceptualization of human dignity may vary among different cultural groups. It may also influence the extent to which the caretaker holds a full-fledged perception of the patients' autonomy.

摘要

背景

世界卫生组织关于痴呆症的报告中的一个关键信息强调,需要改善公众和专业人士对痴呆症的态度及其理解,同时承认痴呆症护理领域的工作人员在文化上日益多样化这一事实。

目的

探讨来自不同文化背景的正式护理人员在对待痴呆症患者的自主权和人类尊严方面可能存在的差异。

研究设计

采用半结构化访谈和内容分析,利用两个虚构的情景来引出护理人员对其患者尊严和自主权的态度。参与者和背景:以色列三个不同文化群体(“土生土长的以色列人”、“阿拉伯人”和“俄罗斯人”)的20名痴呆症患者的正式护理人员,他们在养老院和医院工作。伦理考量:获得并遵循了相关研究伦理委员会的批准。

研究结果

与其他群体相比,大多数阿拉伯护理人员对人类尊严和自主权的认知明显更丰富。他们对人类尊严的概念化强调“以人为本的方法”,他们对患者自主权的认知包括提供解释以及维护和鼓励独立性。

讨论

阿拉伯护理人员与其他护理人员在对待自主权和人类尊严意义的态度上发现的差异,与先前关于人类尊严的研究形成对比,这些研究强调了这些态度的共同性质。该研究在阿拉伯人对尊严和自主权的认知之间建立了一种(理论和实证的)联系,加强并进一步凸显了现有文献中以人为本的护理在提高痴呆症患者护理质量方面的重要性。

结论

不同文化群体对人类尊严的概念化可能有所不同。它也可能影响护理人员对患者自主权全面认知的程度。

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引用本文的文献

1
Do differences exist in cross-cultural caregivers' respect for the autonomy/dignity of people with dementia? Real-time field observations in nursing homes.跨文化护理员对痴呆症患者自主性/尊严的尊重是否存在差异?养老院的实时实地观察。
Dementia (London). 2023 Jul;22(5):935-963. doi: 10.1177/14713012231158410. Epub 2023 Mar 22.