Roberts Courtney A, Geryk Lorie L, Sage Adam J, Sleath Betsy L, Tate Deborah F, Carpenter Delesha M
a Eshelman School of Pharmacy , University of North Carolina , Chapel Hill , NC , USA.
b Gillings School of Global Public Health , University of North Carolina , Chapel Hill , NC , USA.
J Asthma. 2016 Nov;53(9):948-54. doi: 10.3109/02770903.2016.1171339. Epub 2016 Apr 26.
This study examines: 1) adolescent preferences for using asthma self-management mobile applications (apps) to interact with their friends, caregivers, medical providers, and other adolescents with asthma and 2) how caregivers and friends would use mobile apps to communicate with the adolescent and serve as sources of support for asthma management.
We recruited 20 adolescents aged 12-16 years with persistent asthma, their caregivers (n = 20), and friends (n = 3) from two suburban pediatric practices in North Carolina. We gave participants iPods with two preloaded asthma apps and asked them to use the apps for 1 week. Adolescents and caregivers provided app feedback during a semi-structured interview at a regularly-scheduled clinic appointment and during a telephone interview one week later. Friends completed one telephone interview. Interviews were audio-recorded and transcribed verbatim. An inductive, theory-driven analysis was used to identify themes and preferences.
Adolescents preferred to use apps for instrumental support from caregivers, informational support from friends, and belonging and informational support from others with asthma. The majority of adolescents believed apps could enhance communication with their caregivers and medical providers, and the theme of self-reliance emerged in which caregivers and adolescents believed apps could enable adolescents to better self-manage their asthma. Friends preferred to use apps to provide instrumental and informational support.
Given preferences expressed in this study, apps may help adolescents obtain social support to better self-manage their asthma. Future app-based interventions should include features enabling adolescents with asthma to communicate and interact with their caregivers, medical providers, and friends.
本研究探讨:1)青少年对于使用哮喘自我管理移动应用程序(应用)与朋友、照顾者、医疗服务提供者以及其他哮喘青少年进行互动的偏好;2)照顾者和朋友如何使用移动应用与青少年进行沟通,并作为哮喘管理的支持来源。
我们从北卡罗来纳州的两家郊区儿科诊所招募了20名年龄在12至16岁之间的持续性哮喘青少年、他们的照顾者(n = 20)以及朋友(n = 3)。我们给参与者配备了预装有两款哮喘应用的iPod,并要求他们使用这些应用1周。青少年和照顾者在定期诊所预约时的半结构化访谈中以及1周后的电话访谈中提供应用反馈。朋友完成了一次电话访谈。访谈进行了录音并逐字转录。采用归纳性、理论驱动的分析来确定主题和偏好。
青少年更倾向于使用应用从照顾者那里获得工具性支持,从朋友那里获得信息性支持,以及从其他哮喘患者那里获得归属感和信息性支持。大多数青少年认为应用可以加强与他们的照顾者和医疗服务提供者的沟通,并且出现了自我依赖的主题,即照顾者和青少年都认为应用可以使青少年更好地自我管理哮喘。朋友更倾向于使用应用提供工具性和信息性支持。
鉴于本研究中表达的偏好,应用可能有助于青少年获得社会支持以更好地自我管理哮喘。未来基于应用的干预措施应包括使哮喘青少年能够与他们的照顾者、医疗服务提供者和朋友进行沟通和互动的功能。