膝关节功能障碍患者明确患者报告结局测量信息系统（PROMIS®）疼痛干扰和身体功能条目库中需要澄清的条目——一项定性研究。
Individuals with knee impairments identify items in need of clarification in the Patient Reported Outcomes Measurement Information System (PROMIS®) pain interference and physical function item banks - a qualitative study.
作者信息
Lynch Andrew D, Dodds Nathan E, Yu Lan, Pilkonis Paul A, Irrgang James J
机构信息
Department of Physical Therapy, University of Pittsburgh, 229 Bridgeside Point 1, 100 Technology Drive, Pittsburgh, PA, 15219, USA.
UPMC Center for Sports Medicine, Pittsburgh, PA, USA.
出版信息
Health Qual Life Outcomes. 2016 May 11;14:77. doi: 10.1186/s12955-016-0478-7.
BACKGROUND
The content and wording of the Patient Reported Outcome Measurement Information System (PROMIS) Physical Function and Pain Interference item banks have not been qualitatively assessed by individuals with knee joint impairments. The purpose of this investigation was to identify items in the PROMIS Physical Function and Pain Interference Item Banks that are irrelevant, unclear, or otherwise difficult to respond to for individuals with impairment of the knee and to suggest modifications based on cognitive interviews.
METHODS
Twenty-nine individuals with knee joint impairments qualitatively assessed items in the Pain Interference and Physical Function Item Banks in a mixed-methods cognitive interview. Field notes were analyzed to identify themes and frequency counts were calculated to identify items not relevant to individuals with knee joint impairments.
RESULTS
Issues with clarity were identified in 23 items in the Physical Function Item Bank, resulting in the creation of 43 new or modified items, typically changing words within the item to be clearer. Interpretation issues included whether or not the knee joint played a significant role in overall health and age/gender differences in items. One quarter of the original items (31 of 124) in the Physical Function Item Bank were identified as irrelevant to the knee joint. All 41 items in the Pain Interference Item Bank were identified as clear, although individuals without significant pain substituted other symptoms which interfered with their life.
CONCLUSIONS
The Physical Function Item Bank would benefit from additional items that are relevant to individuals with knee joint impairments and, by extension, to other lower extremity impairments. Several issues in clarity were identified that are likely to be present in other patient cohorts as well.
背景
膝关节损伤患者尚未对患者报告结局测量信息系统（PROMIS）身体功能和疼痛干扰条目库的内容和措辞进行定性评估。本研究的目的是识别PROMIS身体功能和疼痛干扰条目库中与膝关节损伤患者无关、不清楚或难以回答的条目，并根据认知访谈提出修改建议。
方法
29名膝关节损伤患者通过混合方法认知访谈对疼痛干扰和身体功能条目库中的条目进行了定性评估。对现场记录进行分析以确定主题，并计算出现频率以识别与膝关节损伤患者无关的条目。
结果
在身体功能条目库中的23个条目中发现了清晰度问题，从而产生了43个新的或修改后的条目，通常是将条目中的词语改为更清晰的表述。解释问题包括膝关节在整体健康中是否起重要作用以及条目中的年龄/性别差异。身体功能条目库中四分之一的原始条目（124条中的31条）被确定与膝关节无关。疼痛干扰条目库中的所有41个条目都被认为是清晰的，尽管没有明显疼痛的个体用其他干扰他们生活的症状进行了替代。
结论
身体功能条目库将受益于增加与膝关节损伤患者相关的条目，并进而受益于其他下肢损伤患者。还发现了一些清晰度问题，这些问题可能在其他患者群体中也存在。
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