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建立“深厚的善意基金”:重塑研究参与度。

Building a "Deep Fund of Good Will": Reframing Research Engagement.

作者信息

Passmore Susan R, Fryer Craig S, Butler James, Garza Mary A, Thomas Stephen B, Quinn Sandra C

出版信息

J Health Care Poor Underserved. 2016;27(2):722-40. doi: 10.1353/hpu.2016.0070.

DOI:10.1353/hpu.2016.0070
PMID:27180705
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5502676/
Abstract

BACKGROUND

The engagement of underrepresented populations in health research has been an ongoing challenge. Yet, the participation of these groups is recognized as key to health equity.

METHODS

Semi-structured interviews with 31 experienced investigators successful in the recruitment of underrepresented minorities were analyzed with reference to the concept of social capital to determine: 1) if it is actually in use by successful researchers although yet unidentified as such; and 2) if the rubric could shed light on new directions especially for those who find it difficult to implement community-engaged recruitment methods systematically.

RESULTS

Findings indicate that some elements of the concept of social capital are being used successfully, but that there are also substantial barriers to its full implementation.

CONCLUSION

A lack of enforceable trust and associated institutional support for researchers is a detriment to research engagement. Efforts to remedy this would benefit large research projects, including clinical trials.

摘要

背景

让代表性不足的人群参与健康研究一直是一项持续存在的挑战。然而,这些群体的参与被认为是实现健康公平的关键。

方法

对31名成功招募到代表性不足少数群体的经验丰富的研究人员进行了半结构化访谈,并参照社会资本的概念进行分析,以确定:1)成功的研究人员是否实际上正在使用它,尽管尚未被识别出来;2)该框架是否能为新方向提供启示,特别是对于那些发现难以系统实施社区参与式招募方法的人。

结果

研究结果表明,社会资本概念的一些要素正在被成功运用,但全面实施也存在重大障碍。

结论

缺乏对研究人员可执行的信任及相关机构支持不利于研究参与。弥补这一不足的努力将使大型研究项目(包括临床试验)受益。

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本文引用的文献

1
The Symbolic Value and Limitations of Racial Concordance in Minority Research Engagement.少数群体研究参与中种族一致性的象征价值与局限性
Qual Health Res. 2016 May;26(6):830-41. doi: 10.1177/1049732315575708. Epub 2015 Mar 13.
2
Strategies addressing barriers to clinical trial enrollment of underrepresented populations: a systematic review.解决代表性不足人群临床试验入组障碍的策略:一项系统综述
Contemp Clin Trials. 2014 Nov;39(2):169-82. doi: 10.1016/j.cct.2014.08.004. Epub 2014 Aug 15.
3
African American men's and women's perceptions of clinical trials research: focusing on prostate cancer among a high-risk population in the South.非裔美国男性和女性对临床试验研究的看法:聚焦于美国南部高危人群中的前列腺癌
J Health Care Poor Underserved. 2013 Nov;24(4):1784-800. doi: 10.1353/hpu.2013.0187.
4
Recruitment of black and Latina women to a randomized controlled trial.招募黑人及拉丁裔女性参与一项随机对照试验。
J Health Care Poor Underserved. 2013 Aug;24(3):1102-14. doi: 10.1353/hpu.2013.0125.
5
Enabling pathways to health equity: developing a framework for implementing social capital in practice.实现健康公平的途径:制定在实践中实施社会资本的框架。
BMC Public Health. 2013 May 29;13:517. doi: 10.1186/1471-2458-13-517.
6
A meta-analysis of social capital and health: a case for needed research.社会资本与健康的荟萃分析:需要开展相关研究。
J Health Psychol. 2013 Nov;18(11):1385-99. doi: 10.1177/1359105311435983. Epub 2013 Apr 2.
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Recruitment of low income, predominantly minority cancer survivors to a randomized trial of the I Can Cope cancer education program.招募低收入、主要为少数族裔的癌症幸存者参与“我能应对”癌症教育项目的随机试验。
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