Passmore Susan R, Fryer Craig S, Butler James, Garza Mary A, Thomas Stephen B, Quinn Sandra C
J Health Care Poor Underserved. 2016;27(2):722-40. doi: 10.1353/hpu.2016.0070.
The engagement of underrepresented populations in health research has been an ongoing challenge. Yet, the participation of these groups is recognized as key to health equity.
Semi-structured interviews with 31 experienced investigators successful in the recruitment of underrepresented minorities were analyzed with reference to the concept of social capital to determine: 1) if it is actually in use by successful researchers although yet unidentified as such; and 2) if the rubric could shed light on new directions especially for those who find it difficult to implement community-engaged recruitment methods systematically.
Findings indicate that some elements of the concept of social capital are being used successfully, but that there are also substantial barriers to its full implementation.
A lack of enforceable trust and associated institutional support for researchers is a detriment to research engagement. Efforts to remedy this would benefit large research projects, including clinical trials.
让代表性不足的人群参与健康研究一直是一项持续存在的挑战。然而,这些群体的参与被认为是实现健康公平的关键。
对31名成功招募到代表性不足少数群体的经验丰富的研究人员进行了半结构化访谈,并参照社会资本的概念进行分析,以确定:1)成功的研究人员是否实际上正在使用它,尽管尚未被识别出来;2)该框架是否能为新方向提供启示,特别是对于那些发现难以系统实施社区参与式招募方法的人。
研究结果表明,社会资本概念的一些要素正在被成功运用,但全面实施也存在重大障碍。
缺乏对研究人员可执行的信任及相关机构支持不利于研究参与。弥补这一不足的努力将使大型研究项目(包括临床试验)受益。