1 Tel Aviv University, Israel.
2 University of British Columbia, Canada.
J Health Psychol. 2018 Aug;23(9):1173-1184. doi: 10.1177/1359105316646171. Epub 2016 May 16.
The purpose of this study was to explore the experiences of parenting a child with a dual diagnosis of childhood deafness and autism spectrum disorder who underwent cochlear implantation. Experiences of these parents are rarely discussed within the literature. Interpretive Phenomenological Analysis was used to examine nine mothers of boys (4-9 years old) for understanding their parenting experiences. Three superordinate themes were identified: complexity, personal and family sacrifices and parent-professional partnerships. These themes provide a rich account of mothers' interpretations of their experiences, and reflect the numerous challenges they face. This study helps expand the literature on cochlear implantation for children with autism spectrum disorder, and discusses implications for clinical and educational practice.
本研究旨在探讨养育同时患有儿童耳聋和自闭症谱系障碍并接受人工耳蜗植入的孩子的父母的体验。这些父母的体验在文献中很少被讨论。本研究采用解释现象学分析方法，对 9 名男孩（4-9 岁）的母亲进行了研究，以了解她们的育儿体验。确定了三个上位主题：复杂性、个人和家庭牺牲以及父母与专业人士的伙伴关系。这些主题提供了对母亲们对其体验的丰富解释，并反映了她们所面临的众多挑战。本研究有助于扩大关于自闭症谱系障碍儿童人工耳蜗植入的文献，并讨论了对临床和教育实践的影响。
