Csóka Mária, Molnár Sándorné, Kellős Éva, Domján Gyula
Alkalmazott Egészségtudományi Intézet, Ápolástan Tanszék, Semmelweis Egyetem, Egészségtudományi Kar Budapest, Vas u 17., 1088.
Országos Egészségbiztosítási Pénztár Budapest.
Orv Hetil. 2016 May 29;157(22):855-68. doi: 10.1556/650.2016.30479.
Parkinson's disease affects more than 6,3 million people worldwide. Most patients and relatives are left alone to struggle with the symptoms associated with fluctuations in drug levels and the psychotic side effects of the anti-Parkinson's medications. Moreover, quite often even health providers may find difficult to interpret and manage the problems that have been encountered.
The aims of the authors were to analyze systematically the biopsychosocial needs of Parkinson's patients, and to develop a complex, evidence-based Parkinson's-nursing-care model.
Patients' needs were assessed based on an observational study involving an old patient with Parkinson's disease for more than 28 years. The model has been specified as a multidisciplinary care framework adapted to the special characteristics of Parkinson's disease which transcends the limitations of different standard nursing models.
The elaborated model contains a detailed description of cooperative problem solving, which is organized around individual patients along with recommendations for addressing various potential problems that might be encountered.
Implementation of the presented model can improve the life quality of Parkinson's patients and can facilitate the life of affected families provided that these families are well aware about the potential benefits of the novel care delivery system.
帕金森病在全球影响着超过630万人。大多数患者及其亲属只能独自应对与药物水平波动相关的症状以及抗帕金森药物的精神副作用。此外，医疗服务提供者常常也难以解释和处理所遇到的问题。
作者的目的是系统分析帕金森病患者的生物心理社会需求，并开发一个复杂的、基于证据的帕金森病护理模式。
基于一项对一名患有帕金森病超过28年的老年患者的观察性研究评估患者需求。该模式已被明确为一个多学科护理框架，它适应帕金森病的特殊特征，超越了不同标准护理模式的局限性。
精心制定的模式包含了对合作解决问题的详细描述，该描述围绕个体患者展开，并针对可能遇到的各种潜在问题提出了应对建议。
如果受影响家庭充分了解这种新型护理提供系统的潜在益处，那么所提出模式的实施可以提高帕金森病患者的生活质量，并便利受影响家庭的生活。
