Saberi Parya, Siedle-Khan Robert, Sheon Nicolas, Lightfoot Marguerita
Department of Medicine, University of California , San Francisco, San Francisco, California.
AIDS Patient Care STDS. 2016 Jun;30(6):254-60. doi: 10.1089/apc.2016.0044. Epub 2016 May 23.
The objective of this study was to conduct focus groups with youth (18-29 years old) living with HIV (YLWH) to better understand preferences for mobile applications in general and to inform the design of a mobile health application aimed at improving retention and engagement in healthcare and adherence to antiretroviral therapy. We conducted four focus groups with YLWH to elicit the names and characteristics of applications that they commonly used, reasons they deleted applications, and the features of an ideal mobile health application. A diverse sample of youth (N = 17) with a mean age of 25 years, 88.2% male, and 29.4% African American participated in four focus groups. Positive attributes of applications included informative, simple, allowing for networking, timely updates, little overlap with other applications, unlimited access to entertainment, and with ongoing advancement. Participants identified several reasons for deleting applications, including engaging in excessive behaviors (e.g., spending money), for hook ups only, too many notifications or restrictions, occupied too much space on device, or required wireless connectivity or frequent updates. Participants suggested that a mobile health application that they would find useful should have the ability to connect to a community of other YLWH, readily access healthcare providers, track personal data and information (such as laboratory data), and obtain health news and education. Privacy was a key factor in a mobile health application for all participants. Researchers can use the information provided by focus group participants in creating mobile health applications for YLWH.
本研究的目的是与感染艾滋病毒的青年(18 - 29岁)进行焦点小组访谈,以更好地了解他们对移动应用程序的总体偏好,并为一款旨在提高医疗保健留存率和参与度以及抗逆转录病毒疗法依从性的移动健康应用程序的设计提供信息。我们与感染艾滋病毒的青年进行了四个焦点小组访谈,以了解他们常用应用程序的名称和特点、删除应用程序的原因以及理想移动健康应用程序的功能。一个多样化的青年样本(N = 17)参与了四个焦点小组访谈,他们的平均年龄为25岁,男性占88.2%,非裔美国人占29.4%。应用程序的积极属性包括信息丰富、简单、便于社交、及时更新、与其他应用程序重叠少、可无限制访问娱乐内容以及不断进步。参与者指出了删除应用程序的几个原因,包括行为过度(如花钱)、仅用于约炮、通知或限制过多、占用设备太多空间、需要无线连接或频繁更新。参与者建议,他们认为有用的移动健康应用程序应具备连接其他感染艾滋病毒青年社区的能力、方便联系医疗服务提供者、跟踪个人数据和信息(如实验室数据)以及获取健康新闻和教育的功能。对所有参与者来说,隐私是移动健康应用程序的一个关键因素。研究人员可以利用焦点小组参与者提供的信息为感染艾滋病毒的青年创建移动健康应用程序。