Kazantzaki Eleni, Kondylakis Haridimos, Koumakis Lefteris, Marias Kostas, Tsiknakis Manolis, Fioretti Chiara, Gorini Alessandra, Mazzocco Ketti, Renzi Chiara, Pravettoni Gabriella
Computational BioMedicine Laboratory, FORTH-ICS, Heraklion, Crete, Greece.
Applied Research Division for Cognitive and Psychological Science, European Institute of Oncology, Italy.
Stud Health Technol Inform. 2016;224:129-34.
Personalized medicine should target not only the genetic and clinical aspects of the individual patients but also the different cognitive, psychological, family and social factors involved in various clinical choices. To this direction, in this paper, we present instruments to assess the psycho-emotional status of cancer patients and to evaluate the resilience in their family constructing in such a way an augmented patient profile. Using this profile, 1) information provision can be tailored according to patients characteristics; 2) areas of functioning can be monitored both by the patient and by the clinicians, providing suggestions and alerts; 3) personalized decision aids can be develop to increase patient's participation in the consultation process with their physicians and improve their satisfaction and involvement in the decision-making process. Our preliminary evaluation shows promising results and the potential benefits of the tools.
个性化医疗不仅应针对个体患者的基因和临床方面，还应考虑各种临床选择中涉及的不同认知、心理、家庭和社会因素。为此，在本文中，我们提出了一些工具，用于评估癌症患者的心理情绪状态，并评估其家庭构建中的恢复力，从而构建一个增强的患者档案。利用这个档案，1）信息提供可以根据患者的特征进行定制；2）患者和临床医生都可以监测功能领域，提供建议和警报；3）可以开发个性化的决策辅助工具，以增加患者在与医生咨询过程中的参与度，并提高他们在决策过程中的满意度和参与度。我们的初步评估显示了这些工具的良好前景和潜在益处。
