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接受干细胞移植的患者的建议:生存者同伴支持叙述的内容分析。

Advice to patients undergoing stem cell transplant: Content analysis of survivor peer support narratives.

机构信息

1 The University of North Carolina at Chapel Hill, USA.

2 William Paterson University, USA.

出版信息

J Health Psychol. 2018 May;23(6):818-828. doi: 10.1177/1359105316648672. Epub 2016 May 29.

Abstract

Hematopoietic stem cell transplant survivors often share advice with patients undergoing this difficult treatment. We content analyzed narratives written by 59 transplant survivors given the opportunity to share advice with patients. Analyses described categories of advice they shared and evaluated their perceptions of the helpfulness of advice they had received. We found nine advice categories and evidence for variation in their perceived helpfulness, especially for advice to "be your own advocate," "have someone you can rely on," and "think positive." Findings suggest the need to investigate how seemingly innocuous advice can be unhelpful and potentially distressing to some patients.

摘要

造血干细胞移植幸存者经常与接受这种困难治疗的患者分享建议。我们对 59 名有机会向患者分享建议的移植幸存者的叙述进行了内容分析。分析描述了他们分享的建议类别,并评估了他们对自己所收到建议的有用性的看法。我们发现了九个建议类别,并证明了它们的有用性存在差异,特别是对于“做自己的代言人”、“找一个可以依靠的人”和“保持积极思考”的建议。研究结果表明,需要研究看似无害的建议如何对一些患者没有帮助,甚至可能带来困扰。

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