Almeida Ana Cristina, Pereira M Graça
University of Minho, Social Sciences Institute, Coimbra Hospital and Universitary Centre, Pediatric Unit, Portugal.
University of Minho, School of Psychology, Portugal.
J Pediatr Nurs. 2016 Sep-Oct;31(5):528-36. doi: 10.1016/j.pedn.2016.04.009. Epub 2016 May 28.
Parental coping allows the family of adolescents with chronic illness to manage their daily activities, provide the care that the adolescent needs to control the disease and influence illness adaptation and family wellbeing. This study analyzed the psychometric properties of the Portuguese version of the Coping Health Inventory for Parents (CHIP).
The sample consisted of 226 parents of adolescents (between 12 and 19years old) with type 1 diabetes, asthma or obesity, diagnosed more than a year ago, who accompanied the teenager during a routine visit. Participants answered the Coping Health Inventory for Parents (CHIP) and Illness Perception Questionnaire ((Brief-IPQ)).
The Portuguese version consists of one less item than the original version (44 items) organized in the same three components - Maintaining Family Integration, Maintaining Social Support and Understanding the Medical Situation - with internal consistency of .80, .82 and .76, respectively. The components of parental coping were related to illness perceptions (personal control, treatment control and concerns) in adolescents with type 1 diabetes, revealing that parental coping was associated with a more threatening perception of the illness. No significant differences were observed on parental coping based on the adolescent's gender, parent's gender, age and education level, type of chronic illness, or single versus two parent families except for adolescence stage, showing that parents of younger teenagers presented higher parental coping than parents of older teenagers.
The Portuguese version of the CHIP showed good psychometric properties to be used with parents of adolescents with chronic illness.
父母的应对方式能使患有慢性病的青少年家庭管理日常活动,提供青少年控制疾病所需的护理,并影响疾病适应和家庭幸福。本研究分析了父母应对健康量表(CHIP)葡萄牙语版本的心理测量特性。
样本包括226名1型糖尿病、哮喘或肥胖青少年(12至19岁)的父母,这些青少年在一年多前被诊断出病情,此次是在常规就诊时由父母陪同。参与者回答了父母应对健康量表(CHIP)和疾病认知问卷(简要版IPQ)。
葡萄牙语版本比原始版本少一个项目(44个项目),同样分为三个部分——维持家庭整合、维持社会支持和理解医疗状况,其内部一致性分别为0.80、0.82和0.76。1型糖尿病青少年父母的应对方式各部分与疾病认知(个人控制、治疗控制和担忧)相关,表明父母的应对方式与对疾病更具威胁性的认知有关。除了青少年阶段外,基于青少年的性别、父母的性别、年龄和教育水平、慢性病类型或单亲家庭与双亲家庭,在父母应对方式上未观察到显著差异,表明年龄较小青少年的父母比年龄较大青少年的父母表现出更高的父母应对水平。
CHIP的葡萄牙语版本显示出良好的心理测量特性,可用于患有慢性病青少年的父母。