帕金森病患者的认知：伊朗的一项定性研究
Perceptions of people living with Parkinson's disease: a qualitative study in Iran.
作者信息
Soleimani Mohammad Ali, Bastani Farideh, Negarandeh Reza, Greysen Ryan
机构信息
Assistant Professor, Social Determinants of Health Research Center, Qazvin University of Medical Sciences, Qazvin, Iran.
Professor, Department of Geriatrics Nursing, School of Nursing and Midwifery, Iran University of Medical Sciences, Tehran, Iran.
出版信息
Br J Community Nurs. 2016 Apr;21(4):188-95. doi: 10.12968/bjcn.2016.21.4.188.
AIM
This study explores the primary concerns and perceptions of patients living with Parkinson's disease (PD).
METHOD
This was an exploratory qualitative study. A purposive sample of 17 patients with PD who were attending a hospital outpatients' neurology clinic in Iran were recruited. Study data were collected through semi-structured interviews and analysed using the conventional qualitative content analysis approach.
FINDINGS
We identified the 'fear of becoming disabled' as a primary concern in these patients. This concern affected the physical, emotional, mental, and social aspects of their lives. The 'fear of becoming disabled' fell into four categories, including progressive physical disability, mental alteration, decreasing social connectedness, and self-change.
CONCLUSION
The study results showed that older adults with PD face a number of challenges in self-care. In addition, the 'fear of becoming disabled' was the main concern of patients with PD, particularly in late stages of the disease.
目的
本研究探讨帕金森病（PD）患者的主要担忧和认知。
方法
这是一项探索性定性研究。招募了17名在伊朗一家医院门诊神经科就诊的帕金森病患者作为目的抽样样本。研究数据通过半结构化访谈收集，并采用传统定性内容分析法进行分析。
结果
我们将“害怕致残”确定为这些患者的主要担忧。这种担忧影响了他们生活的身体、情感、心理和社会方面。“害怕致残”可分为四类，包括进行性身体残疾、精神改变、社会联系减少和自我改变。
结论
研究结果表明，老年帕金森病患者在自我护理方面面临诸多挑战。此外，“害怕致残”是帕金森病患者的主要担忧，尤其是在疾病晚期。
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