Moon Heehyul, Townsend Aloen L, Dilworth-Anderson Peggye, Whitlatch Carol J
Raymond A. Kent School of Social Work, University of Louisville, Louisville, KY, USA
Mandel School of Applied Social Sciences, Case Western Reserve University, Cleveland, OH, USA.
Am J Alzheimers Dis Other Demen. 2016 Sep;31(6):508-15. doi: 10.1177/1533317516653819. Epub 2016 Jun 10.
The goal of this study was to explore predictors of discrepancy between reports of caregivers (CGs) and care recipients (CRs) with mild-to-moderate dementia about CRs' quality of life (QOL).
This study was a secondary analysis of cross-sectional data drawn from a study of 200 care dyads of CRs with mild-to-moderate dementia and their primary family CGs. Paired t test, ordinary least squares multiple regression, and binary logistic regression were used for the analyses.
Caregivers rated CRs' QOL significantly lower (worse) than CRs did. Ordinary least square regression results showed that greater incongruence in perceptions of CRs' decision-making involvement (DMI) and higher level of CR impairment in activities of daily living were significantly related to higher absolute discrepancy between CG and CR about CRs' QOL. In the logistic models, when the dyad had more DMI incongruence, or CG reported higher relationship strain, the CG was more likely to report a lower CR QOL than CR reported.
Practitioners should consider incorporating CRs' perspective when planning care instead of solely depending on CGs' perspective. Also, practitioners should pay attention to any gap between perceptions of CGs and CRs, particularly with regard to CRs' QOL.
本研究的目的是探讨轻度至中度痴呆症患者的照顾者（CG）和受照顾者（CR）关于CR生活质量（QOL）报告之间差异的预测因素。
本研究是对一项针对200对轻度至中度痴呆症CR及其主要家庭CG的研究中的横断面数据进行的二次分析。采用配对t检验、普通最小二乘多元回归和二元逻辑回归进行分析。
照顾者对CR生活质量的评分显著低于（更差）CR自身的评分。普通最小二乘回归结果表明，对CR决策参与（DMI）的认知差异越大，以及CR日常生活活动能力损害程度越高，与CG和CR在CR生活质量方面的绝对差异越大显著相关。在逻辑模型中，当二元组的DMI不一致性更大，或者CG报告的关系紧张程度更高时，CG比CR更有可能报告CR的生活质量较低。
从业者在规划护理时应考虑纳入CR的观点，而不是仅仅依赖CG的观点。此外，从业者应注意CG和CR认知之间的任何差距，特别是关于CR生活质量方面的差距。
