Nell Hodgson Woodruff School of Nursing, Emory University, 1520 Clifton Rd, Atlanta, GA 30322, United States.
Nell Hodgson Woodruff School of Nursing, Emory University, 1520 Clifton Rd, Atlanta, GA 30322, United States.
Geriatr Nurs. 2021 Jul-Aug;42(4):919-925. doi: 10.1016/j.gerinurse.2021.05.001. Epub 2021 Jun 5.
There is limited research exploring how daily and formal care decision making occurs within African American dementia dyads as well as how these dyads navigate decision making across the dementia trajectory. Through semi-structured interviews, five African American dementia dyads shared their decision-making processes. We used a multimethod approach to the analysis of data, including qualitative and quantitative content analysis and the creation of I Poems. This novel use of I Poems provided a uniquely personal account of the lived experiences of the African American persons living with dementia, while other analyses revealed that within dyads, daily care decision making was led by African American persons living with dementia, whereas formal care decision making varied between dyads. There was intra-dyad congruence regarding who the final decision maker was in daily and formal care. Clinicians and researchers may be able to tailor interventions based on the dyad's involvement in these decision-making processes.
针对非裔美国痴呆症患者及其照护者如何做出日常和正式的照护决策，以及他们如何在整个痴呆症病程中做出决策，相关研究有限。通过半结构化访谈，五对非裔美国痴呆症患者及其照护者分享了他们的决策过程。我们采用了一种多方法的数据分析方法，包括定性和定量内容分析以及 I 诗的创作。这种新颖的 I 诗使用方式提供了一个独特的、个人化的视角，描述了非裔美国人患有痴呆症的生活体验，而其他分析则表明，在照护者与患者的日常互动中，日常照护决策由患有痴呆症的非裔美国人主导，而正式的照护决策则因照护者而异。在日常和正式的照护决策中，谁是最终决策者，这在照护者之间是一致的。临床医生和研究人员可以根据照护者在这些决策过程中的参与情况，调整干预措施。
