Soyiri Ireneous N, Nwaru Bright I, Sheikh Aziz
Asthma UK Centre for Applied Research, Centre for Medical Informatics, Usher Institute of Population Health Sciences and Informatics, The University of Edinburgh, Edinburgh, UK.
School of Health Sciences, University of Tampere, Tampere, Finland.
Pediatr Allergy Immunol. 2016 Dec;27(8):779-783. doi: 10.1111/pai.12603. Epub 2016 Jul 15.
There is increasing recognition of the importance of patient's perceptions of disease and their assessments of heathcare processes. Patient-reported outcome measures (PROMs) are therefore now regarded as at least as important as the traditional objective measures of disease. For minors, parental and, except in the very young and severally cognitively impaired, the child's perspectives are important because they provide unique and complementary information. In this review, we summarize the evidence on PROMs for allergy and asthma for use in children. Overall, there are fewer PROMs available for use in children than in adults. We were able to identify some validated pediatric PROMs that have been developed for use in atopic eczema/dermatitis, food allergy, allergic rhinitis/rhinoconjunctivitis, and asthma. There is very limited evidence on deploying these instruments out with research settings. There is therefore a pressing need to report on the experiences of using PROMs for allergy and asthma in routine clinical care. In particular, there is a need to understand how acceptable these are to children/carers, whether they can be incorporated into routine clinical assessments and if they are responsive to changes in treatment made in routine clinical practice.
患者对疾病的认知及其对医疗过程的评估的重要性日益受到认可。因此,患者报告结局指标(PROMs)现在被认为至少与传统的疾病客观指标同样重要。对于未成年人,除了非常年幼和严重认知受损的情况外,父母以及孩子的观点都很重要,因为它们提供了独特且互补的信息。在本综述中,我们总结了用于儿童过敏和哮喘的PROMs的相关证据。总体而言,可用于儿童的PROMs比成人的要少。我们能够识别出一些已验证的儿科PROMs,这些是为特应性湿疹/皮炎、食物过敏、过敏性鼻炎/鼻结膜炎和哮喘而开发的。在研究环境之外使用这些工具的证据非常有限。因此,迫切需要报告在常规临床护理中使用PROMs评估过敏和哮喘的经验。特别是,有必要了解儿童/照顾者对这些指标的接受程度,它们是否可以纳入常规临床评估,以及它们是否能对常规临床实践中的治疗变化做出反应。