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三家健康诊所中的以患者为中心的参与式研究:益处、挑战及经验教训

Patient-Centered Participatory Research in Three Health Clinics: Benefits, Challenges, and Lessons Learned.

作者信息

Fava Nicole M, Munro-Kramer Michelle L, Felicetti Irene L, Darling-Fisher Cynthia S, Pardee Michelle, Helman Abigail, Trucco Elisa M, Martyn Kristy K

机构信息

1 Florida International University, Miami, FL, USA.

2 University of Michigan, Ann Arbor, MI, USA.

出版信息

West J Nurs Res. 2016 Nov;38(11):1509-1530. doi: 10.1177/0193945916654665. Epub 2016 Jul 9.

Abstract

Research informed by individuals' lived experiences is a critical component of participatory research and nursing interventions for health promotion. Yet, few examples of participatory research in primary care settings with adolescents and young adults exist, especially with respect to their sexual health and health-risk behaviors. Therefore, we implemented a validated patient-centered clinical assessment tool to improve the quality of communication between youth patients and providers, sexual risk assessment, and youths' health-risk perception to promote sexual health and reduce health-risk behaviors among adolescents and young adults in three community health clinic settings, consistent with national recommendations as best practices in adolescent health care. We describe guiding principles, benefits, challenges, and lessons learned from our experience. Improving clinical translation of participatory research requires consideration of the needs and desires of key stakeholders (e.g., providers, patients, and researchers) while retaining flexibility to successfully navigate imperfect, real-world conditions.

摘要

基于个人生活经历的研究是参与式研究以及促进健康的护理干预的关键组成部分。然而,在初级保健环境中针对青少年和青年开展的参与式研究实例很少,尤其是在性健康和健康风险行为方面。因此,我们采用了一种经过验证的以患者为中心的临床评估工具,以提高青年患者与医疗服务提供者之间的沟通质量、性风险评估以及青年的健康风险认知,从而在三个社区健康诊所环境中促进青少年和青年的性健康并减少其健康风险行为,这与国家建议相符,是青少年医疗保健的最佳实践。我们描述了指导原则、益处、挑战以及从我们的经验中学到的教训。提高参与式研究的临床转化需要考虑关键利益相关者(如医疗服务提供者、患者和研究人员)的需求和愿望,同时保持灵活性以成功应对不完美的现实世界情况。

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本文引用的文献

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A "Triple Threat" to Research Protocols and Logistics: Adolescents, Sexual Health, and Poverty.
Nurs Sci Q. 2016 Jan;29(1):14-20. doi: 10.1177/0894318415614623.
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9
Health-risk behaviors in young adolescents in the child welfare system.儿童福利系统中青少年的健康危险行为。
J Adolesc Health. 2010 Jul;47(1):26-34. doi: 10.1016/j.jadohealth.2009.12.032. Epub 2010 Mar 15.

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